Posts Tagged With: lupus

Happy 1 Year Anniversary Purple Hair!

Wow!  What can I say Purple Hair?

YOU HAVE ROCKED MY WORLD!

YOU HAVE HELPED ME FIND THE REAL NAHLEEN!

YOU ARE THE REASON I SMILE EVERY TIME I LOOK IN THE MIRROR!

YOU ADD A SPARK TO MY SPIRIT TO KEEP ME GOING!

YOU–PURPLE HAIR–HAVE BECOME A WONDERFUL PART OF MY LIFE…

THANK YOU PURPLE HAIR.

1 Year Ago today my Purple Hair and I were introduced and it has been quite a journey.  Every day I’d get up in my foggy MS/lupus haze and think about how my day was going to play out.  Sometimes I’d dread the day or feel lost in my symptoms.  Sometimes I’d be sad.  But then I’d look in the mirror and see that I had PURPLE HAIR!  It’s not the cure for everyday frustrations or for my physical problems, but it sure has helped A LOT!

Because of my relationship with my Purple Hair, I have found the courage to be more of the Real Me: The Real Nahleen.  I have more spunk.  I have more confidence.  I smile when I see my purple bangs fall into my eyes.  I am more creative.  It has helped put more skip in my step.  My world has opened up before my eyes.  And everyday is a new day with my Purple Hair.  It seems to change color/shade daily.  Sometimes it’s because it’s washing out (I have to re-purple every 2 to 3 weeks depending on my life, longevity of the color and when I feel up to it), sometimes it’s because it feels like it, sometimes it’s because of the curl in my hair and quite often it’s because I’ve changed the hue of purple I’m using or the brand.  Turns out there are quite a few brands out there that provide all kinds of varieties of purple to wear in your hair.  Sometimes it comes out like a magenta.  Sometimes it comes out almost black with a few lighter streaks due to the bleaching of some of those streaks of hair.  If my hair is straighter the purple doesn’t show up as much.  Oh yeah and then there are the times perhaps I haven’t used as much purple during the next re-purpling or it stays in longer or it just does what it wants to do at the time.

Each purple I LOVE!  And if I’m getting low on purple in my hair I can tell.  I get more down and depressed.  I don’t feel that extra spark.  I don’t have the spunk…you know, that extra umpf!

And to think I was so scared to really go PURPLE!  What was my problem?  What is the world’s problem that they can’t accept more colors such as purple, orange, green, blue, teal, bright yellow or whatever the heck someone wants in their hair BUT they’ll accept the reds, the browns, the blondes that might as well be yellow at times.  Who cares?  It’s a color!  What’s wrong with that?  SERIOUSLY?!  It’s just hair!  Why not be taken as seriously?  Why not be treated as professional?  I never understood that before I actually had the purple hair and NOW I really don’t get it.

FOR GOODNESS SAKES IT’S COLOR!  THE WORLD NEEDS MORE OF IT!

That’s my world rant for the day I guess…but I digress…

The point is, I have learned that I needed this purple in my life.  I’m not kidding.  Ever since I was 10 years old I have wanted purple hair.  I tried some magentas here and there as I got older and some maroons BUT never did purple on my hair.  I didn’t want to make a mess.  That was one excuse.  I didn’t want to take the time.  That was another.  To be honest, it doesn’t take that much time.  If you have time to color your hair a brown, blonde, black or even red color than you have time to color it purple.  REALLY.  There are no extras involved.

Sure it can leave a stain.  Sometimes it looks like there was a purple explosion in the bathtub but who cares?  It doesn’t last.  It goes away, just like it leaves my hair.

What I have learned most since I started my relationship with my Purple Hair a year ago in March 2012 is that it’s OK TO BE ME.  And the MORE I brought that PURPLE out the more I was ME.  So here’s my advice to you all who are just chomping at the bit to do something funky with your hair, do it!  What are you waiting for?  I have cut my hair a lot shorter but I want to go even shorter and be more funky.  I’m still a bit nervous about that so I need to follow my own advice don’t I?  I guess that’s the next part of my path huh?

And if you have a color that you feel you really connect with in your life you NEED to bring it out more.  It doesn’t have to be with hair.  It can be with anything.  ANYTHING.

REALLY.

I absolutely believe that it will HELP YOU.

So PURPLE HAIR, HERE’S TO ANOTHER YEAR!  BRING IT ON WORLD!  WITH YOU PURPLE HAIR I CAN DO ANYTHING!

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Victory!: Cambria!

We’re home.  We’re back from Cambria, CA!

We had a wonderful, peaceful, soothing, gentle and adventurous time!  It was so good to get away for a couple of days with Corey and spend some time together–just us.  It has been years since we have been able to do that and I am sooooo happy we did it.

WE REALLY DID IT!

My lupus and multiple sclerosis behaved for the most part.  I had some weird symptoms showing up here and there but for the most part I think I felt better because I was so relaxed and distracted.  My walking every day has really helped in the long run when it comes to my ability to walk around and explore new places and my ability to stand for long periods of time.  I do still get store fatigue but I could stand quite a bit and what was interesting was that the sun didn’t bother me too much until the later afternoon.  The temperature was definitely cooler than LA especially at night but even during the day the temperature might have gone to 60.  Glad I was given a chance to be in cooler temperatures because it sounds like LA is going to get hot over this next week or so.  Blech.  But first things first and one day at a time I’ll make it there.

There was a jacuzzi spa jet tub in the room so that helped my body immensely.  I think if I had one of these I could get into every day my MS and lupus would be very happy.  I’d be getting that massage I needed daily.  Oh well.  One day.  I can dream.  We were also able to get massages before we left to drive home which were lovely.  There was a boarded walkway from our hotel, through the trees and towards the beach.  Wow!  What an amazing walk and sunset that was.  I tell ya.  There’s nothing like hearing frogs and ocean waves at the same time.  I don’t think I’ve ever experienced that.  And the sunset was magical.

The people there seem happy and are incredibly friendly.  We had a conversation with each local we met.  They were so welcoming.  I think perhaps it may have been partly because the economy has been way down since last November but I also really believe that this is how they are in general.

I have lots and lots of pictures to share with you soon once I get them loaded.  This trip came at THE PERFECT time…as my life is hitting the next turning point…there is no mistake we took this trip when we did.

And to finish, I’ll say that years ago we headed north from LA to San Simeon to see Hearst Castle and that was neat.  Hearst Castle is quite an experience.  What a view from up there.  That night we traveled a bit south to see what was going on in Cambria since it seemed like there was nothing happening in San Simeon.  It was dark and the businesses were only open for a few more hours.  Those few hours made a great impact on our lives and we knew we had to come back someday.  Well that someday came this past weekend and after being there for less than 48 hours I can honestly say it has now made an imprint on my soul.  May sound hokey but I believe it’s true.  Actually, I know it’s true.  What a beautiful, spiritual and peaceful place.

UH OH!  I HAVE BEEN BITTEN BY THE CAMBRIA BUG!

I can think of worse things…can’t you?

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CAMBRIA HERE WE COME!

YIPPEEEE!!!!

Heading to Cambria today at some point when we can pull ourselves together! We have reservations at a spa/hotel/resort in a room that has a king size bed, jacuzzi style tub with spa jets, a fireplace, a pillow top bed, a spa to get massages and facials, supposed live entertainment on Saturday nights, a luxury continental breakfast in the mornings, a walkway that connects to a boardwalk that leads through a State Park straight to the ocean and the list goes on and on! I can’t wait!

Yesterday was the kind of day that went really well in the beginning and it all flowed really well and then about halfway through after making a business call it sank and it sank fast. I don’t want to get into it but this trip has come at the PERFECT TIME!

Not only is Cleo Kitty doing quite well (and we have a lovely lady coming to watch and stay with her who has bonded with her in the past which I tell you is a VERY RARE THING if you’re not Corey or myself), I am feeling much much better from taking care of myself and going to the doctor and taking antibiotics that IMMEDIATELY kicked that infection’s buttinsky and from the storms happening last night that ACTUALLY INCLUDED ONE HUGE BRIGHT FLASH OF LIGHTNING AND THEN A HUGE CRAZY CRACK OF THUNDER RIGHT OVERHEAD (which is VERY RARE AND EXCITING IN LA) so that helped me get some physical relief, I’m actually feeling up to taking a road trip (WHOA! LOOK AT ME GO!–haven’t been able to plan a road trip or trust that I could do one longer than 2 hours and that was pushing it…for AGES it feels like), I’m going with Corey and I can’t remember the last time we got away just the 2 of us to a place that wasn’t connected to anyone we knew (don’t get me wrong I love my peeps but we need some REAL TIME AWAY), and well IT IS JUST TIME.

So off we go at some point today. Part of this whole trip is the road trip. We will get there when we get there. I used to love road trips with Corey. We have the best time if we just go with it. I keep thinking we should be hurrying up and leaving now but then that’s not either of our styles to be honest and that would kick my already emotionally fragile lupus and MS butt that has made my physicality a bit fragile too today. So when it’s meant to be that we go, we go.

To be honest, after that phone call yesterday regarding YET ANOTHER BIG LIFE DECISION (HAVEN’T I MADE ENOUGH OF THOSE LATELY!? A GAL NEEDS A BREAK HERE AND THERE!), if I wasn’t already getting away and planning on running away anyway to try to relax and clear my head, I would’ve run away anyway. I have mentally had ENOUGH!

So enough of this writing chatter. Gotta get back to my self care so we can get the heck outta here.

THE ONLY DOWNSIDE?

… (sad face here) Leaving Cleo Kitty. I haven’t left her since the whole “cancer” episode (I say that because she is so resilient and awesome that she doesn’t seem to have cancer (really long story–but she does have some other serious health problems and sensitivities. Never did get a definitive diagnosis because she’s a kitty and didn’t need to be more traumatized than she already was for goodness sakes) and that was in December 2011. We are quite attached to each other and have been each other’s caretakers since then. So as much as I know it is for the best, it will still be hard. But we will be back Sunday night. And I have to remember that the fact that we can even leave her at this point is amazing. In November we had planned a similar trip to celebrate 15 years together and 6 years of marriage and had to cancel it because her health was so questionable and we couldn’t leave her. Now I look at her and it’s hard to believe that happened. She’s so in the mood to keep living and we finally got to the bottom of her health stuff too so that’s good.

Anyway, I keep babble-writing. Off I go!

Write soon!

Oh and to my new followers HI! Yay! Thanks for joining me on my crazy path. To my commenters–yay thank you for commenting! I plan on responding next week.

Have a great weekend y’all! I know I am not the only one going through this thing we call life and holy moly it can be hard and intense…

Love to all!

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THE COUGH DECIDES TO START NOW?!?!

I’M COUGHING TODAY?! TODAY?!

I’ve been waiting for and fighting off something like a sick bug that I could feel trying to start for what seems like 2 months and it has worked. I have held it off. AND TODAY IT WANTS TO START GETTING BAD?

UM HELLO! COREY AND I ARE TRYING TO GET AWAY THIS WEEKEND TOGETHER TO GO TO CAMBRIA!

We’re overdue for it. This is supposed to be to celebrate 15 years together (actual Anniversary was in November) and 6 years married (in November too). We weren’t able to go because our poor Cleo Kitty was sick and I don’t blame her for that.

And all has been going pretty well with my health (I mean ups and downs and IBS stuff yesterday if you read my Blog post about that–it’s better if you’re wondering at least for the moment) and it’s been pretty manageable till NOW?!

NOW?!

I TRIED not to have any expectations about whether we would really take this trip but of course I have some. Of course I’m feeling like I should go into CRISIS MODE and think EVERYTHING’S OVER.

I should just crouch in a dark corner and not come out for goodness sakes. I mean, if the cough has started on Wednesday, how can I be better enough for Friday? I know how my cough is. And how can I get those “things” done I think I HAVE to get done in time for then?

WHY ME? WHY NOW? DANG IT!

So action time it is. No not running around like a wild mess (just…yet…anyway…). I got up, called my doctor and have made an appointment for 2:15pm. HOW COOL ARE THEY TO BE SO AVAILABLE? Oh and I get to see my favorite PA there too so another positive. I’m moving in the right direction. It is currently 12:45pm. I have to finish up writing this ASAP (and that’s true) so I can shower (always a big event for me with MS and lupus and now this dang sickness that’s coming on that has also turned into a fever–OK 99.1 but for me that’s a fever no matter what ANY doctor says) and drive over there and get to the solution ASAP. I have been told time and time again and even lectured by my doctors to not play with my cough. I have asthmatic tendencies that could EASILY turn into full on bronchitis or pneumonia especially with a messed up and compromised immune system so I CANNOT (emphasis on the NOT here) play with this. There is NO WAITING. If I feel a cough I do my best to get to the doctor ASAP.

And I have more of a MOTIVATION. Let’s kill this now. NOW.

DID I SAY NOW ENOUGH? You know, as if I have any control over a sick bug…..

Ha ha ha. Yeah right.

But I will do what I can to kill it.

Earlier this year I declared it was the year of OPERATION NURTURE NAHLEEN 2013!

Well…this is it.

OPERATION NURTURE NAHLEEN IS IN FULL EFFECT!

……….

P.S. I will do my best NOT to go past the NOW, not to go past TODAY and NOT to jump into the FUTURE which is only an illusion ANYWAY.

GOLLY I HOPE THIS HELPS AND WORKS.

I really really really really really (I can’t stress the reallys enough here) wanted to get away for a few days. THAT’S ALL. I haven’t gotten away in so long.

PLEASE.

I guess I’ll be flip flopping between Crisis and Operation Nurture all day. Suppose I’m human right.

Hmm. Interesting.

I’m a HUMAN…

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STUPID UNPREDICTABILITY!

I CAN’T STRESS THIS ENOUGH! THE UNPREDICTABILITY OF MY IBS, LUPUS AND MS IS THE WORST THING EVER TO DEAL WITH WHEN IT COMES TO DEALING WITH CHRONIC DISEASES!

I know I was busy today. I know I was doing a lot of physical things. I know I can feel the weather coming (rain) on Friday. I know that I have IBS. I know that I have lupus. I know that I have MS. I know that I need to take care of myself. I know that the diseases are their own entities. I know they can act up whenever they want. I know I probably (notice my denial) pushed it today. I know that my diseases can flare up randomly.

I KNOW I KNOW I KNOW!!!!

BUT I DON’T KNOW…

!@#$%^&*(@ IT! (Insert swear word of choice here to express the feelings). No words can really fit for me to really express the frustration when it comes up.

There I was going along my merry way and then all the sudden my IBS just went BOOM in my digestive system and I started having stomach cramps OUT OF NOWHERE. WHAT THE?! I haven’t had stomach cramps in quite awhile thank you very much. I don’t want them right now. It’s actually been VERY NICE without them.

Sooooo, even though I’m almost done with stuff for today, I have to be done even sooner because MY BODY HAS DECIDED IT’S DONE.

…………………………..gggrrrr

So deep breaths I will take to calm down. Getting too worked up will set the stomach cramping on fire…

Time to rest and destress if possible…hopefully that helps.

It’s so UNPREDICTABLE it’s crazy. I haven’t been having a lot of stomach problems lately…I’ve been trying not to remark about it on purpose. But the IBS is still there. Yep. Hasn’t left. Go figure.

So now I do feel a bit better because I vented and wrote about it. Gotta calm down and destress and give in to my body. It wants love.

FINE! FINE! FINE! FINE! FINE!

Please let me eat tonight belly. Please…eating only toast is boring and doesn’t help fill me up…

PLEASE…

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My Relationship with the Sun

Posted this on my Facebook Page Nahleen.com and thought it was perfect for a Blog post for today.  What came out wasn’t really intended which is why I think it’s worth the Blog post.  It hit a personal spot I didn’t know existed.  I love it when that happens!

 

SO HERE IT IS:

 

“Today is quote day I guess:, “Truly the light is sweet, and a pleasant thing it is for the eyes to behold the sun.”–Ecclesiastes—this feels really touches my heart because I absolutely love the light and really became friends with the sun especially when I was diagnosed with MS 10 years ago…we were best friends. Yet I always wondered why I felt weird in it and I couldn’t place it. I just thought it must be the MS…yet it was the sun that helped keep me sane. I truly believe that. The more I was outside, the more fresh air I got, the better I felt mentally. I wasn’t nearly as claustrophobic. But then I found out I had Lupus 2.5 years ago and EVERYTHING changed. I had to get out of the sun. I had to get away from it. Turns out it was really harming me too and that’s why I felt “weird”. I really grieved the LOSS of my contact with the sun especially that first year after my lupus diagnosis…it really did make me feel worse, especially because my body was so flared up and inflamed…now I wear sunscreen every day, hats as much as I can handle in the sun, sun protective clothing and it really helps…but it still bothers me. Turns out my relationship with the sun had to change and will probably never be the same again and that’s great for my physical health and a lot of my mental health because there is relief when my body is in darkness and I don’t have to mentally fight so hard to deal BUT IT IS SO HARD TO FULLY LET IT GO. So I take it one day at a time. And when I can get time with the sun I take it…even in small increments because I can’t cut it out totally…it is a part of who I am…guess it really teaches me how to deal with any relationship…”

Thank you all for being here.  You’re really helping me figure out who I am!

 

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DUDE!: 85 degrees in Los Angeles, CA on March 1st?!

I mean I get it.  I live in a desert.  Los Angeles, CA is a desert.

BUT COME ON NOW!  85 DEGREES IN WEST LA on March 1st?!

GROSS!

I read today that today is the first day of Meteorological Spring.  Did LA skip any kind of spring and jump right to summer?!

Um, my multiple sclerosis and lupus are very mad at you weather.  They have been in a snit for the past few days anyway because it’s been in the 80s but today was just too much.  The sun has also been crazy intense and we aren’t even in the summer months yet.  Plus you jumped from 65 to 80 within a few hours and haven’t dropped below 80 during the day for a few days.

What happened to rainy season?  Are we not getting it this year?  That’s so uncool too.  We already basically live in a drought day in and day out.  We never really get the amount of rain we really ever need and I just heard that yesterday there was a brush fire in Riverside.  Now granted that’s pretty far away from where I live but it tells me we are in big ole trouble this year if this continues.

So this is the part where I start being really sappy nice to you weather because I mentally love you and am fascinated by your whole being.  Can you bring the temperature down about 15 degrees???  I think 70 is fabulous with a light breeze and some cool white puffy clouds in the sky.  Just lovely.  Some birds chirping would be nice too but I digress.

PLEASE PLEASE PLEASE don’t last 85 degrees.  I get enough of those days during the very long LA summer and have to deal.  But March 1st is really hard to deal with.  It puts a whole damper on me and my life.  The sun and heat fatigue start and well that’s just yucky…

OK?!  ARE WE COOL?  CAN WE COME TO A COMPROMISE?

I’ll even deal with 75 degrees.  That’s OK too.

Just some thoughts…you know.

I hope I wasn’t too rude earlier.  It just gets me upset when I’m too hot and too sunned and it takes NOTHING for me to go there and then I get cranky and I don’t like that.  An un-cranky Nahleen is better.

SOOOO YEAH.  I guess I’ve stated my case.

Hope you listened, understand and can help me out…

THANKS!

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301 DAYS! That’s How Many Days…

–I’ve walked in a row!

I can’t believe it! I have walked 301 days in a row. I am not kidding. I have been keeping track since I knew that I might be able to make it walking day by day.

I’m so excited! If/When I make it to a full year I will have to call/send a thank you not to my Physical Therapist who spurred me on last year in the first place. She told me just to walk. That walking was THE THING for me to do in my situation with MS and lupus. There was no question. I needed to walk. What did that entail? That entailed not judging myself by how far I’ve walked or how long. That I just needed to make it a point to walk. Seriously, she told me, I don’t care if it’s just a few minutes. If you don’t keep your legs moving you will be in trouble. Your MS and lupus will get the best of you and you may find one day that you can’t walk or that they are just too stiff and you may not have the motivation to do what you need to do–WALK– and to keep on keepin’ on.

So that’s what I’ve been doing. How do I do it? Well I walk near where my doctor appointments are. I walk in my apartment around and around if I have to. I have a walk dance I do that must look really cute. I walk around the block near my apartment. I walk at the mall I’ve gone to. I walk around the museum I have a membership to. I walk/march to a TV show I’m watching.

I WALK.

And my legs are so much better than they used to be. Sure there are days that my legs think I must absolutely be kidding them but they usually thank me in the end. In the beginning it was much harder because it felt like when I was walking that I might be causing some damage. That there must be days I shouldn’t be walking at all and I should rest them.

NOPE.

I am now more confident on my feet, I feel stronger, I have more endurance, I can walk longer distances and handle hills better, my mind and head get some de-stressing and meditation, I get to see outside and be with the world and the earth, I get to move my whole body, I can participate in more events, I can stand in line at supermarkets longer, I can handle my life better in GENERAL.

And that’s because I WALK.

And now I don’t know how not to walk during my day. I think I would be lost without walking. My body asks me for it and reminds me if I don’t do it.

SO I WALK AND I WILL CONTINUE WALKING NO MATTER WHAT AS LONG AS MY BODY ALLOWS ME.

So tonight as I think about what is frustrating me, I will turn my mind to the positive things going on in my life and one of the main parts of my life is that I WALK and I have WALKED 301 DAYS IN A ROW.

A TRUE MIRACLE and I am absolutely grateful to have met a woman, my previous Physical Therapist, who was able to get the message through to me in the right way.

JUST WALK. DON’T PUSH. JUST WALK. DON’T THINK TOO HARD. JUST WALK. DON’T JUDGE. JUST WALK.

Well, turns out she might just be onto something.

I think I’ll continue to do just that.

WALK!

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GO AWAY LUPUS AND MULTIPLE SCLEROSIS!

DO YOU MIND BODY?!

I’M TRYING TO HAVE A LIFE HERE.

GO AWAY LUPUS, MULTIPLE SCLEROSIS, IBS, SINUS ISSUES, SENSITIVITIES TO EVERYTHING ELSE IN THE WORLD IT SEEMS LIKE! I’M DONE WITH YOU TODAY!

Of course, I’ve been done with you before you even started but I don’t want you here. Can’t you see I’m busy? Can you see I’m trying to expand my life? Can you see my mind’s busy? Yeah, I know that you get tired of my busy mind but I have given up and changed so many things in my life for you. MY MIND IS SOOOOO LESS BUSY THAN IT USED TO BE AND YOU KNOW IT BODY…

WHY DO I HAVE TO GIVE UP MORE TODAY?

ENOUGH!

Sure, I’m better than I was a year ago or perhaps even 6 months ago. Well that’s all good and I’d like to celebrate but not today.

I DON’T WANT TO CELEBRATE!

And if I did celebrate would that wear me out too? Would my butt still feel like it’s kicked? Would my hands still hurt while typing this? Would any activity take the wind out of me before I even really started it?

YES there is weird different weather happening. I HAVE NO CONTROL OVER THAT. It was 85 in LA for 2 days and then just warmer in general and now a big COLD storm is coming which I started feeling a week ago and my body is CONFUSED!

OK. WELL CONFUSION DOESN’T MEAN I HAVE TO STOP EVERYTHING!

LEAVE ME ALONE!

HOW DO I EXPAND MY LIFE WHEN YOU KEEP GETTING IN MY WAY?!

Sure I just had 2 doctor appointments last week and both doctors said they thought I was so much better.

BETTER….

BETTER….

CAN SOMEONE PLEASE TELL ME WHAT THAT MEANS EXACTLY?

BETTER….

Yet here I am with my butt feeling kicked again and feeling CRAPPY. What’s weird about today is that I’m having symptoms that I CANNOT DESCRIBE. I guess I just need to call them WEATHER SYMPTOMS…

AND THIS IS ME! I’M A WEATHER GEEK FOR GOODNESS SAKES! I LOVE THE WEATHER! I WANT TO BE FOCUSED ON THE EXCITEMENT OF THE IDEA OF “YAY!” WEATHER IS HAPPENING IN LA! HOW COOL IS THAT?!

Not.

Cool.

When.

I.

Have.

MS.

And.

Lupus.

………………………………

And yet somehow I just keep on going and am able to write this. I had to get it out. I’M SO FRUSTRATED! And the world keeps turning despite how I feel. And I look out the window and watch as people go along with their day…and they have NO IDEA what I’m going through and I have NO IDEA what’s happening in their lives.

AND LIFE GOES ON.

And yes I will be excited about the weather.

BUT.

The

MS

And

Lupus

Will Still Be Here With Me Through It All…

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A CLEAN MOUTH OF HEALTH!

OMG!  No WAY!

This is the second time in a row that I have gone to the Dentist and been told that my mouth is doing really well!  HOW COOL IS THAT?!

See with LUPUS and lupus medications, I have had a tendency to have dry mouth syndrome (I know there’s a name for it), swollen gums, bleeding gums, sensitive teeth, a sensitive or swollen tongue (TMI I know), cankers and just a whole bunch of IRRITATION!

Well lately I’ve been thinking about my Dentist appointment coming up and have realized that I have not been thinking about my mouth lately.  Now isn’t that a weird sentence for ya!  Funny how that is.  I have been thinking about issues and symptoms in my mouth for years…EVEN BEFORE THE LUPUS DIAGNOSIS IN AUGUST 2010.

SO YEAH.

All is CLEAN AND WELL IN NAHLEEN’S MOUTH!

That may have been more than you needed to know but I’m happy to share it because right now, any good physical health is a huge VICTORY for me these days!

The ONLY REMINDER I got from my Dentist is to be really careful and pay extra attention to my Wisdom teeth (yes I still have ALL 4 OF THEM!  If only I was more WISE from them…) because that’s where all the problems can really start since they’re so hard to get to.  I get that reminder every time so it wasn’t a big concern.

SO HOW COOL IS THAT?!

I NEED MORE APPOINTMENTS LIKE THAT!

I was so up from that good news and appointment that I found myself eating lunch at the Veggie Grill using a gift card given to me by an awesome friend, and having my favorite B-Wing Salad (if you haven’t tried you have got to!), then driving to Santa Monica beach so I could pick up some purple hair dye and stock up at a new store (of which I LOVE and had no idea about–thank you SIRI on my IPhone–you may be creepy but you helped a lot today), ended up purchasing some special muscle soak bath salts that are all natural and stopped by a Jamba Juice to try to get some extra nutritional needs taken care of since I’m going on a special diet prep for a special Hydrogen Breathing Test on Thursday.  Needless to say Wednesday will be weird, hence the dying the hair purple to pep me up for Thursday’s “UN-FUNNESS” of no eating and no meds till after the test that may take over 3 hours (YIPPY SKIPPY), and nurturing the body because lupus and MS can get very irritated from being so OUT OF ROUTINE and depleted of all things to take care of it.

I also found myself driving along the coast and parking very easily at a spot along the street with my Handicapped Placard (best part about having one is parking and not having to pay for meters or worry about time constraints unless they’re Street Sweeping–learned that the hard way years ago) and walking down the stairway (COULD NOT HAVE PLANNED THAT BETTER), only to find myself walking out onto a WALKWAY halfway onto the beach and then straight towards the ocean.  It was a cloudy cool day so hardly anyone was there…THAT IS EXCEPT 2 DIFFERENT PHOTO SHOOTS (one of them may have been a music video–so WISH I knew who those 2 different women in different locations were with their whole entourages) and lots of birds taking advantage of the absence of weird human creatures.

Once that was done I dragged my satisfied self (getting tired by then but so happy to be taking care of myself and things just so wonderfully falling into place) to the grocery store to get some regular groceries and other items to help me get through the strange diet menu I need to have tomorrow to Prep for that Thursday test.

SO ALL IN ALL.  A pretty good day even if I do say so myself and I DO!

Was also nice to see that our Cleo Kitty was doing better since this morning because this morning she got sick I think from eating her food too fast and that always worries us with her health issues.  She seems to still be recovering but is much better I think.  Was probably good for me to get away and leave her alone so she could get some REAL rest but BOY was she HAPPY TO SEE ME AND I TO SEE HER.

I LOVE MY CLEO KITTY!

OK.  Time to unwind…

It’s nice when days fall into place.  They rarely do that with such ease and I’m going to take the time to enjoy that…

AND BREATHE…

RIGHT NOW.  DID YOU BREATHE WITH ME?  YOU SHOULD TRY IT.  MAKES A BIG DIFFERENCE.

That’s even better.

Hope you all have had a good day too!  We all deserve more of those!  Write to you soon!

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