Posts Tagged With: beach

Victory!: Cambria!

We’re home.  We’re back from Cambria, CA!

We had a wonderful, peaceful, soothing, gentle and adventurous time!  It was so good to get away for a couple of days with Corey and spend some time together–just us.  It has been years since we have been able to do that and I am sooooo happy we did it.

WE REALLY DID IT!

My lupus and multiple sclerosis behaved for the most part.  I had some weird symptoms showing up here and there but for the most part I think I felt better because I was so relaxed and distracted.  My walking every day has really helped in the long run when it comes to my ability to walk around and explore new places and my ability to stand for long periods of time.  I do still get store fatigue but I could stand quite a bit and what was interesting was that the sun didn’t bother me too much until the later afternoon.  The temperature was definitely cooler than LA especially at night but even during the day the temperature might have gone to 60.  Glad I was given a chance to be in cooler temperatures because it sounds like LA is going to get hot over this next week or so.  Blech.  But first things first and one day at a time I’ll make it there.

There was a jacuzzi spa jet tub in the room so that helped my body immensely.  I think if I had one of these I could get into every day my MS and lupus would be very happy.  I’d be getting that massage I needed daily.  Oh well.  One day.  I can dream.  We were also able to get massages before we left to drive home which were lovely.  There was a boarded walkway from our hotel, through the trees and towards the beach.  Wow!  What an amazing walk and sunset that was.  I tell ya.  There’s nothing like hearing frogs and ocean waves at the same time.  I don’t think I’ve ever experienced that.  And the sunset was magical.

The people there seem happy and are incredibly friendly.  We had a conversation with each local we met.  They were so welcoming.  I think perhaps it may have been partly because the economy has been way down since last November but I also really believe that this is how they are in general.

I have lots and lots of pictures to share with you soon once I get them loaded.  This trip came at THE PERFECT time…as my life is hitting the next turning point…there is no mistake we took this trip when we did.

And to finish, I’ll say that years ago we headed north from LA to San Simeon to see Hearst Castle and that was neat.  Hearst Castle is quite an experience.  What a view from up there.  That night we traveled a bit south to see what was going on in Cambria since it seemed like there was nothing happening in San Simeon.  It was dark and the businesses were only open for a few more hours.  Those few hours made a great impact on our lives and we knew we had to come back someday.  Well that someday came this past weekend and after being there for less than 48 hours I can honestly say it has now made an imprint on my soul.  May sound hokey but I believe it’s true.  Actually, I know it’s true.  What a beautiful, spiritual and peaceful place.

UH OH!  I HAVE BEEN BITTEN BY THE CAMBRIA BUG!

I can think of worse things…can’t you?

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A CLEAN MOUTH OF HEALTH!

OMG!  No WAY!

This is the second time in a row that I have gone to the Dentist and been told that my mouth is doing really well!  HOW COOL IS THAT?!

See with LUPUS and lupus medications, I have had a tendency to have dry mouth syndrome (I know there’s a name for it), swollen gums, bleeding gums, sensitive teeth, a sensitive or swollen tongue (TMI I know), cankers and just a whole bunch of IRRITATION!

Well lately I’ve been thinking about my Dentist appointment coming up and have realized that I have not been thinking about my mouth lately.  Now isn’t that a weird sentence for ya!  Funny how that is.  I have been thinking about issues and symptoms in my mouth for years…EVEN BEFORE THE LUPUS DIAGNOSIS IN AUGUST 2010.

SO YEAH.

All is CLEAN AND WELL IN NAHLEEN’S MOUTH!

That may have been more than you needed to know but I’m happy to share it because right now, any good physical health is a huge VICTORY for me these days!

The ONLY REMINDER I got from my Dentist is to be really careful and pay extra attention to my Wisdom teeth (yes I still have ALL 4 OF THEM!  If only I was more WISE from them…) because that’s where all the problems can really start since they’re so hard to get to.  I get that reminder every time so it wasn’t a big concern.

SO HOW COOL IS THAT?!

I NEED MORE APPOINTMENTS LIKE THAT!

I was so up from that good news and appointment that I found myself eating lunch at the Veggie Grill using a gift card given to me by an awesome friend, and having my favorite B-Wing Salad (if you haven’t tried you have got to!), then driving to Santa Monica beach so I could pick up some purple hair dye and stock up at a new store (of which I LOVE and had no idea about–thank you SIRI on my IPhone–you may be creepy but you helped a lot today), ended up purchasing some special muscle soak bath salts that are all natural and stopped by a Jamba Juice to try to get some extra nutritional needs taken care of since I’m going on a special diet prep for a special Hydrogen Breathing Test on Thursday.  Needless to say Wednesday will be weird, hence the dying the hair purple to pep me up for Thursday’s “UN-FUNNESS” of no eating and no meds till after the test that may take over 3 hours (YIPPY SKIPPY), and nurturing the body because lupus and MS can get very irritated from being so OUT OF ROUTINE and depleted of all things to take care of it.

I also found myself driving along the coast and parking very easily at a spot along the street with my Handicapped Placard (best part about having one is parking and not having to pay for meters or worry about time constraints unless they’re Street Sweeping–learned that the hard way years ago) and walking down the stairway (COULD NOT HAVE PLANNED THAT BETTER), only to find myself walking out onto a WALKWAY halfway onto the beach and then straight towards the ocean.  It was a cloudy cool day so hardly anyone was there…THAT IS EXCEPT 2 DIFFERENT PHOTO SHOOTS (one of them may have been a music video–so WISH I knew who those 2 different women in different locations were with their whole entourages) and lots of birds taking advantage of the absence of weird human creatures.

Once that was done I dragged my satisfied self (getting tired by then but so happy to be taking care of myself and things just so wonderfully falling into place) to the grocery store to get some regular groceries and other items to help me get through the strange diet menu I need to have tomorrow to Prep for that Thursday test.

SO ALL IN ALL.  A pretty good day even if I do say so myself and I DO!

Was also nice to see that our Cleo Kitty was doing better since this morning because this morning she got sick I think from eating her food too fast and that always worries us with her health issues.  She seems to still be recovering but is much better I think.  Was probably good for me to get away and leave her alone so she could get some REAL rest but BOY was she HAPPY TO SEE ME AND I TO SEE HER.

I LOVE MY CLEO KITTY!

OK.  Time to unwind…

It’s nice when days fall into place.  They rarely do that with such ease and I’m going to take the time to enjoy that…

AND BREATHE…

RIGHT NOW.  DID YOU BREATHE WITH ME?  YOU SHOULD TRY IT.  MAKES A BIG DIFFERENCE.

That’s even better.

Hope you all have had a good day too!  We all deserve more of those!  Write to you soon!

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The Many Shades of…

Life?

Feelings?

Disease?

Lupus?

Multiple Sclerosis?

Thoughts?

Realities?

Colors?

Greys?

Emotions?

Me?

ALL OF THE ABOVE.

That is how I’m feeling today.  I used to think in black and white.  Then I discovered there were many shades of black and white.  Then I realized grey happens too.  And there are many shades of grey.  After talking with a friend today I have come to the conclusion that there are also many shades of all colors.  There are even colors that I didn’t even know existed.

THAT IS LIFE.

It is how I feel about the above list and much much more.  What a roller coaster this life is.  What a roller coaster my life is with MS and lupus.  I had a hard week last week mentally.  I felt completely depleted.  The weekend helped a lot.

Saturday was a pretty good day for me.  I was able to spend hours on the phone with a good friend from high school and that would’ve been hard for me to do even a year ago.  Talking can be exhausting for me cognitively (I know I know, those of you who know me can’t believe that with all the talking I do…).  Then I talked to my family after that too.  It was a big phone day.  I was also able to make it to Corey’s Improv Show to see him perform with the group he’s in, The Magic Meathands, along with a bunch of other really talented peeps and had a ball laughing and getting out of my head.

Sunday ended up being a really nice fulfilling day too.  Yeah, I was tired from my activities the day before but with a little coaxing Corey convinced me to go to the beach and watch the solar eclipse.  It was so nice to be able to walk on the beach in the cool sand (never walked on cool sand) and have my feet in the ocean while watching the eclipse.  It is when I’m standing in the ocean that I feel the most connected, present and at peace.  Everything else just falls away.  I don’t get to do it enough because I am afraid to be in the sun too much due to my lupus sun sensitivities and MS heat sensitivities so this was a real treat for me.  And the fresh air was wonderful.  It helped me relax A LOT.  Last night I thought I had gotten away with being in the sun because I didn’t feel too physically bad at all.  I think I actually felt better physically.

…UNTIL I woke up this morning with what I call the “heavies”.  UGH.

I was FINALLY able to figure out THIS MORNING that it’s the sun that triggers lupus and the heat that triggers the MS and thus the “heavies” begin.  What are the “heavies”?  You know those X-Ray vest thingies they put on you at the dentist?  That is what it feels like all over.  It’s crazy heavy fatigue.  It means I am in DESPERATE need of rest and I need to stop everything.  Oh and that wasn’t my plan today whatsoever.  I had THINGS TO DO.  Well, my body told me it needed rest and I was forced to listen.  Those THINGS TO DO are going to have to wait.  (I still hate to wait even though IT HAPPENS ALL THE TIME.)

So up and down and up and down and up and down I go.  The many shades that I referred to in the beginning of this post kept coming up in my thoughts this morning.  I don’t regret having a good weekend and probably doing too much.  I feel pretty darn good about it.  (That’s huge for me by the way).  It’s just soooooooooooo hard (words can’t describe my feelings–hence the many shades…) to live life with lupus and MS.  So frustrating.  Yet I’m grateful I was able to walk the beach and see the ocean.  I’m grateful to have had my time with Corey and that he performs and gives me excuses to get out and to laugh.  Laughter is the best.

And the many shades continue…

I will end with posting a couple of YouTube videos of James Morrison singing “Wonderful World”.  I LOVE HIS VOICE.  The first is the official music video which is really kinda odd but I like the production of the song.  The second is just audio and no video of the acoustic version of the same song.  I hope you enjoy them.  I heard this song almost exactly 2 years ago right before my whole body went to hell in what I later found out was a lupus flare.  At the time I heard this song my eyes had gone wacky and I was having an extremely hard time seeing and processing light.  I was feeling pretty darn down.  I heard this song and he really hit me.  He not only hit on my emotions that I still feel a lot to this day but he reminds me that I’m not alone.

Enjoy!

 

 

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