Posts Tagged With: heat

DUDE!: 85 degrees in Los Angeles, CA on March 1st?!

I mean I get it.  I live in a desert.  Los Angeles, CA is a desert.



I read today that today is the first day of Meteorological Spring.  Did LA skip any kind of spring and jump right to summer?!

Um, my multiple sclerosis and lupus are very mad at you weather.  They have been in a snit for the past few days anyway because it’s been in the 80s but today was just too much.  The sun has also been crazy intense and we aren’t even in the summer months yet.  Plus you jumped from 65 to 80 within a few hours and haven’t dropped below 80 during the day for a few days.

What happened to rainy season?  Are we not getting it this year?  That’s so uncool too.  We already basically live in a drought day in and day out.  We never really get the amount of rain we really ever need and I just heard that yesterday there was a brush fire in Riverside.  Now granted that’s pretty far away from where I live but it tells me we are in big ole trouble this year if this continues.

So this is the part where I start being really sappy nice to you weather because I mentally love you and am fascinated by your whole being.  Can you bring the temperature down about 15 degrees???  I think 70 is fabulous with a light breeze and some cool white puffy clouds in the sky.  Just lovely.  Some birds chirping would be nice too but I digress.

PLEASE PLEASE PLEASE don’t last 85 degrees.  I get enough of those days during the very long LA summer and have to deal.  But March 1st is really hard to deal with.  It puts a whole damper on me and my life.  The sun and heat fatigue start and well that’s just yucky…


I’ll even deal with 75 degrees.  That’s OK too.

Just some thoughts…you know.

I hope I wasn’t too rude earlier.  It just gets me upset when I’m too hot and too sunned and it takes NOTHING for me to go there and then I get cranky and I don’t like that.  An un-cranky Nahleen is better.

SOOOO YEAH.  I guess I’ve stated my case.

Hope you listened, understand and can help me out…


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Operation Nahleen New ‘Do!

OK.  So here I am.  I’ll spare you the scary in-between pics (weird foil and other strange things they do to your hair when coloring it and stuff) and show you the results instead.

I decided to go to a totally different hair stylist this time to see what would happen.  Devachan is the name of the place and they specialize in curly hair.  I really had a great experience there the whole way through.  I was pampered as soon as I walked in the door.

I had scheduled a hair appointment just to cut my hair and a hair color consultation (the hair coloring would come another time).  So what I didn’t mention earlier is that I had a VERY different hair style before this final hair style.  I LOVED IT BUT it wasn’t me.  My awesome hair stylist told me that if any adjustments were needed on my hair she’d do them at the coloring appointment.  So I really thought about how my hair was during the 4 days between appointments and came to the conclusion that it was really NOT going to work out.  I was looking for something fun, more out of my face (find that more and more I can’t stand it too much in my face–think it’s sensory thing with health stuff), off my neck (heat reasons due to MS and well probably the lupus too), could handle wearing a hat more (lupus–need to wear one almost all the time if there’s any UV rays or I can FEEL them), handle the curls, a little funky too AND OF COURSE IT HAD TO HAVE PURPLE!  Sooooo, at the coloring appointment I had a heart to heart with my stylist and she took care of it and together we came up with this.  I got to have 2 different hair styles and pamperings in 5 days!  I call it the ME DO.  She’s a Junior Stylist who is working her way up to Senior Stylist and I think she was pretty nervous because she was trying something very new and NOT what she had recommended at first.

However, AT THE FINALE, the Senior Stylist who was there was blown away by the outcome and exclaimed how SUPER CUTE it was!  That it was TOTALLY me and that I was a true artist by telling her what I needed.  So it worked out great because my Junior Stylist got a lot of praise and was also happy with how it came out.  I think we both learned a lot from each other.  She was very funny, sweet and honest.  Meant for me I think.  Turns out the Senior Stylist wanted pictures right away from his phone so that he could include them in their own Hair Style Manual for examples.  Well then.  That’s a pretty neat compliment if you ask me.

And without further ado:


Here’s the Final! Doesn’t really show how good it looked but it shows the purple!

Side view! Needed the cut to be short to be off my neck for health and heat reasons mostly. I love it that short!

The FINAL of the back although I shouldn’t say that because my hair stylist kept fixing it even as I was walking out the door…

And when I got home I kept playing with it so we could see it from all angles. It’s purple, it’s practical, it’s cute and it’s ME! I LOVE IT!

And another angle because I was having fun!

And I just had to show the top!

And I post this one because I feel like it shows my spunkier side. I’m thrilled with this style FOR ME!


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Rough Week

Thought I’d check in.


Monday was a Holiday and I was still recovering from feeling yucky over the weekend.  Thank goodness Tuesday worked out with the Pulmonologist and all of my reflection because then the whole week wouldn’t have been so great.  Then again, it was a lot of hard work going to that appointment and being out in the heat.

So then Wednesday comes along and all chaos breaks out because the AC’s not working in the apartment.  In fact, it’s more like heat was coming in the vents and the temperature was rising by the minute.  It’s a long story but it’s not looking good for the whole building at this point.  Sure, the AC is working a bit right now thank goodness (nice bandaid they put on it I guess) but it’s only temporary and I was told it would take months to really get it up and running again.  Hmm, needless to say I was not happy about that since my MS and lupus continue to be so dang sensitive to the heat.  Oh and to top it off, I can’t get the YouTube links to work on my ’80s Blog post for this week so that’s been delayed STILL.  Geez.  Looking into that.

Thursday’s been a catch up day for me but I’ve had to reconfigure my whole day and my health depends on as much routine as possible.  So in order to make sure I’m able to get some stuff done before the AC “might” stop working again today, I had to go to the grocery store before my shower and exercises (I feel much much better if I do my whole self care regimen first usually) and then eat, take a shower and exercise–all the while hoping the AC wouldn’t go down again.  I know I’m blessed to have AC.  I’m truly grateful.  BUT life sucks without it.  My body started acting up RIGHT AWAY as it is getting warmer.  Sucks big time.

And tomorrow I need to see the Gastroenterologist because my digestive symptoms are starting to act up again and I want to address it sooner rather than later.  UGH!  I really don’t like going to the doctor on Fridays.  They’ve half checked out for the week and I’m pretty much done and spent from the week.  Sooooo, this should be interesting.  Here’s hoping he can help me and it’s nothing too serious.  As if I need more symptoms and health stuff to manage.  Please if you can, send along good thoughts for me.  Since that appointment is happening I may not get a chance to post my Moments of Peace but I will play it by ear.  I may need to be reminded that there are such things as peace.

OK.  Gonna go now.  Gotta rest.  My body’s done with me.

I hope you’re all having a better week than me.  I am aware that I’ve had worse times for sure but it’s been quite a hard one and I’m feeling tired and bothered.

Take care.


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It’s So Hard to Have Multiple Sclerosis and Lupus and…Part 2

….do anything during the summer.

Sure we’ve been blessed with cooler temperatures than the rest of the country here in Los Angeles, CA all June and into July, but that doesn’t mean it isn’t summer.

Summer, MS and lupus mean more intense sun and more heat.  A BAD COMBINATION!

More intense sun and more heat mean my MS and lupus flare up more.

More flare ups mean I don’t feel as well.  They mean that I find myself negotiating every action I take even more and everything takes EVEN MORE EFFORT.  EVERYTHING.

I know this is how it works.  The summer is hot.  There’s more sun.  However, logic doesn’t block the fact that I feel worse.  Logic only seems to help me have answers as to why I feel the way I do.

I tend to either miss social events more or suffer more.  This weekend was a great weekend BUT it was still hard.  I was able to take an Indian cooking class on Saturday night and actually go and EVEN participate–BUT I had to take on the dish that didn’t require heat.  Kinda hard to do but I managed it since there was one dish that mainly needed to be stirred and then put in the fridge.  I still needed to wear longer sleeves because the sun’s UV rays come through windows and can still bother me.  I still ended up standing a lot which was my choice but still tired me out.  Sometimes sitting really isn’t the answer either.  I was still out and away from my home comfort zone and socializing which I love to do but it can be tiring.  It was still an EVENT.

Then Sunday I got up and baked some brownies for a post wedding potluck party.  I do enjoy baking but that required heat.  As much as I could’ve bought a dessert at the store I was up to making them so I did, yet that of course required heat.  Then I pulled myself together and drove to the party which was kinda far away but this newlywed pair is important to me so I wanted to go and support them and I still BASICALLY felt up to it.  I was at the party, wearing my hat, sunscreen, a sunprotective jacket and tried to stay out of the sun BUT it was still very hot, I could still feel the UV rays from the sun in the shade and it was one of those weird times when my MS and lupus were arguing and neither were happy.  Most of the time they will deal with a compromise but this time neither was happy.  With the jacket on I was too hot and my MS acted up.  With my jacket off I was too affected by the sun and my lupus acted up.  So I dealt as long as I could because I wanted to be there and then once I left and was in the car with constant intense sun beating on me through the windshield…


I had an awful wave of what I call “wave of weird” or “overwhelm” where I felt nauseous and too hot and too much sun and felt my body shutting down.  Enough was enough.  The sun was SUCKING the life out of me.  Then I had this crazy wave of emotion come through me and as much as I tried to hold in the crying, I let myself cry and that was what helped the most.  I surrendered.  I didn’t hold it in.  I didn’t fight any longer and I cried.  It didn’t last long but I had had enough.  When I think about it, there was nothing else to do but cry.  Now one thing to note is that there is an “emotion symptom” with MS where MS can cause crazy powerful emotions and sometimes random emotions to happen and you have no control over them.  I do think that was happening a bit–doesn’t happen that often but there have been times I’m pretty sure that’s what’s been going on–but most of it was that I HAD HAD ENOUGH AND I COULDN’T TAKE IT ANYMORE.

So once I cried, so many of my symptoms cleared up and suddenly the freeway cleared (I kid you not–different freeway but it was still noteworthy) and I was able to get home pretty fast and crawl onto my bed in the dark bedroom with the AC on and rest.  Boy did that help.  A LOT.

And fortunately I was a lot better after that.  I was just worn out.  My body was quite fatigued.

I feel blessed and grateful to say that I’ve bounced back from the episode pretty well today considering what I went through (still VERY tired), but I wanted to be honest and share with you what REALLY happened to me yesterday–what REALLY happens to me during my bad times.  Parts of me still want to keep this private but I think it’s better to be REAL about this because the SUMMER IS THE HARDEST SEASON for me.  It’s very hard to put this into words but I hope you have a little better understanding of what I deal with.

One day, one hour, one moment, one thing at a time…

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It’s An ’80s Kind of Day Part 10!

10 whole lists of ’80s and they just keep on comin’!

I’m relieved that today is ’80s day because I need some fun, laughs and rest for my arms.  They are feeling very tight today (and for that reason the list will be a bit shorter again).  Hmmm….and on the first day of summer.  A coincidence when it comes to multiple sclerosis, lupus, heat and the sun?  I think not.

Sooooo, what can I find to distract me from my symptomatic woes?:


1. Cruel Summer By: Bananarama

And so to start off the summer right, how about a summer-themed song?  I sure hope the summer isn’t cruel to me (when it comes to my MS and lupus).  And oh my goodness did I love Bananarama back in the day?  Listening to them still gets me going a bit.  Oh yeah.  Their dancing is oh so cool as they walk together.  I gotta admit–I wanted to walk down the street the same way with some gal pals of mine back in the day (and now too) just like they are and they aren’t the first ones to do that strut either.  Did I just see a gas price of $1.48???  Wow, this really is old huh?  Do you think they had as much fun as they look like they’re having?  It’s true.  It was really hard to do any physical work outside in the heat with such big hair.  Wow.  Lucky Mack Truck driver huh?  Bet he thinks he’s gonna get lucky.  Yep.  That’s the Empire State Building in case we forgot.  How many shots of that do we have to see?


2. Ghostbusters By: Ray Parker Jr.

Thanks to a friend online for bringing up this song/movie the other day and saying that she always thought when he sings, “Bustin’ makes me feel good” she thought he said, “Boston makes me feel good” because that’s what I thought too and I haven’t been able to stop chuckling about it ever since.   Fun times!  How could you forget such silliness EVER?!  Ha ha ha!  Hilarious special effects!  Love the people that pop up out of nowhere to yell “Ghostbusters!”.  Tee hee.  Is he supposed to be a ghost?  Get it?!  Love seeing the clips from the movie.  Makes me want to see it again.  It’s been forever.  OK.  Why does he feel more like a stalker than a ghost?  I’m sensing an overall ’80s theme here in my lists of lots of stalkers.  What the heck?  I can’t stop cracking up over this.  Too hokey!  I just have to wonder, is he afraid of ghosts?  I just can’t figure it out.  (Corey–is that Carly Simon in there?–What the?)…So if we don’t know who to call about ghosts then I think we have a problem at this point.


3. She Blinded Me With Science By: Thomas Dolby

Such a unique song.  Awesome.  Had no idea the video had a silent movie feel to it.  Nice.  Oh sure.  She blinded him with science of the “showing some leg kind”.  Funny.  She’s quite the vixen.  I still love to go around and say in the high pitched voice, “Blinded me with science”!  It’s fun.  You should try it.  Oh the randomness is too entertaining.  Loving this!  I tell ya.  It’s pure blasphemy and trouble to be wooed by a woman.  We are trouble.  Oh and I love his eye makeup and glasses.  She’s the violin.  Nice.  Very creative.  Worth the watch for sure!  The doctor gets his “come-uppance!”  I love it!


And thank you to the ’80s for more distracting fun!  My hands and arms are now yelling at me.  Time to rest them!

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