Victory!: Cambria!

Posted on March 11, 2013 by Nahleen

We’re home.  We’re back from Cambria, CA!

We had a wonderful, peaceful, soothing, gentle and adventurous time!  It was so good to get away for a couple of days with Corey and spend some time together–just us.  It has been years since we have been able to do that and I am sooooo happy we did it.

WE REALLY DID IT!

My lupus and multiple sclerosis behaved for the most part.  I had some weird symptoms showing up here and there but for the most part I think I felt better because I was so relaxed and distracted.  My walking every day has really helped in the long run when it comes to my ability to walk around and explore new places and my ability to stand for long periods of time.  I do still get store fatigue but I could stand quite a bit and what was interesting was that the sun didn’t bother me too much until the later afternoon.  The temperature was definitely cooler than LA especially at night but even during the day the temperature might have gone to 60.  Glad I was given a chance to be in cooler temperatures because it sounds like LA is going to get hot over this next week or so.  Blech.  But first things first and one day at a time I’ll make it there.

There was a jacuzzi spa jet tub in the room so that helped my body immensely.  I think if I had one of these I could get into every day my MS and lupus would be very happy.  I’d be getting that massage I needed daily.  Oh well.  One day.  I can dream.  We were also able to get massages before we left to drive home which were lovely.  There was a boarded walkway from our hotel, through the trees and towards the beach.  Wow!  What an amazing walk and sunset that was.  I tell ya.  There’s nothing like hearing frogs and ocean waves at the same time.  I don’t think I’ve ever experienced that.  And the sunset was magical.

The people there seem happy and are incredibly friendly.  We had a conversation with each local we met.  They were so welcoming.  I think perhaps it may have been partly because the economy has been way down since last November but I also really believe that this is how they are in general.

I have lots and lots of pictures to share with you soon once I get them loaded.  This trip came at THE PERFECT time…as my life is hitting the next turning point…there is no mistake we took this trip when we did.

And to finish, I’ll say that years ago we headed north from LA to San Simeon to see Hearst Castle and that was neat.  Hearst Castle is quite an experience.  What a view from up there.  That night we traveled a bit south to see what was going on in Cambria since it seemed like there was nothing happening in San Simeon.  It was dark and the businesses were only open for a few more hours.  Those few hours made a great impact on our lives and we knew we had to come back someday.  Well that someday came this past weekend and after being there for less than 48 hours I can honestly say it has now made an imprint on my soul.  May sound hokey but I believe it’s true.  Actually, I know it’s true.  What a beautiful, spiritual and peaceful place.

UH OH!  I HAVE BEEN BITTEN BY THE CAMBRIA BUG!

I can think of worse things…can’t you?

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CAMBRIA HERE WE COME!

Posted on March 8, 2013 by Nahleen

YIPPEEEE!!!!

Heading to Cambria today at some point when we can pull ourselves together! We have reservations at a spa/hotel/resort in a room that has a king size bed, jacuzzi style tub with spa jets, a fireplace, a pillow top bed, a spa to get massages and facials, supposed live entertainment on Saturday nights, a luxury continental breakfast in the mornings, a walkway that connects to a boardwalk that leads through a State Park straight to the ocean and the list goes on and on! I can’t wait!

Yesterday was the kind of day that went really well in the beginning and it all flowed really well and then about halfway through after making a business call it sank and it sank fast. I don’t want to get into it but this trip has come at the PERFECT TIME!

Not only is Cleo Kitty doing quite well (and we have a lovely lady coming to watch and stay with her who has bonded with her in the past which I tell you is a VERY RARE THING if you’re not Corey or myself), I am feeling much much better from taking care of myself and going to the doctor and taking antibiotics that IMMEDIATELY kicked that infection’s buttinsky and from the storms happening last night that ACTUALLY INCLUDED ONE HUGE BRIGHT FLASH OF LIGHTNING AND THEN A HUGE CRAZY CRACK OF THUNDER RIGHT OVERHEAD (which is VERY RARE AND EXCITING IN LA) so that helped me get some physical relief, I’m actually feeling up to taking a road trip (WHOA! LOOK AT ME GO!–haven’t been able to plan a road trip or trust that I could do one longer than 2 hours and that was pushing it…for AGES it feels like), I’m going with Corey and I can’t remember the last time we got away just the 2 of us to a place that wasn’t connected to anyone we knew (don’t get me wrong I love my peeps but we need some REAL TIME AWAY), and well IT IS JUST TIME.

So off we go at some point today. Part of this whole trip is the road trip. We will get there when we get there. I used to love road trips with Corey. We have the best time if we just go with it. I keep thinking we should be hurrying up and leaving now but then that’s not either of our styles to be honest and that would kick my already emotionally fragile lupus and MS butt that has made my physicality a bit fragile too today. So when it’s meant to be that we go, we go.

To be honest, after that phone call yesterday regarding YET ANOTHER BIG LIFE DECISION (HAVEN’T I MADE ENOUGH OF THOSE LATELY!? A GAL NEEDS A BREAK HERE AND THERE!), if I wasn’t already getting away and planning on running away anyway to try to relax and clear my head, I would’ve run away anyway. I have mentally had ENOUGH!

So enough of this writing chatter. Gotta get back to my self care so we can get the heck outta here.

THE ONLY DOWNSIDE?

… (sad face here) Leaving Cleo Kitty. I haven’t left her since the whole “cancer” episode (I say that because she is so resilient and awesome that she doesn’t seem to have cancer (really long story–but she does have some other serious health problems and sensitivities. Never did get a definitive diagnosis because she’s a kitty and didn’t need to be more traumatized than she already was for goodness sakes) and that was in December 2011. We are quite attached to each other and have been each other’s caretakers since then. So as much as I know it is for the best, it will still be hard. But we will be back Sunday night. And I have to remember that the fact that we can even leave her at this point is amazing. In November we had planned a similar trip to celebrate 15 years together and 6 years of marriage and had to cancel it because her health was so questionable and we couldn’t leave her. Now I look at her and it’s hard to believe that happened. She’s so in the mood to keep living and we finally got to the bottom of her health stuff too so that’s good.

Anyway, I keep babble-writing. Off I go!

Write soon!

Oh and to my new followers HI! Yay! Thanks for joining me on my crazy path. To my commenters–yay thank you for commenting! I plan on responding next week.

Have a great weekend y’all! I know I am not the only one going through this thing we call life and holy moly it can be hard and intense…

Love to all!

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THE COUGH DECIDES TO START NOW?!?!

Posted on March 6, 2013 by Nahleen

I’M COUGHING TODAY?! TODAY?!

I’ve been waiting for and fighting off something like a sick bug that I could feel trying to start for what seems like 2 months and it has worked. I have held it off. AND TODAY IT WANTS TO START GETTING BAD?

UM HELLO! COREY AND I ARE TRYING TO GET AWAY THIS WEEKEND TOGETHER TO GO TO CAMBRIA!

We’re overdue for it. This is supposed to be to celebrate 15 years together (actual Anniversary was in November) and 6 years married (in November too). We weren’t able to go because our poor Cleo Kitty was sick and I don’t blame her for that.

And all has been going pretty well with my health (I mean ups and downs and IBS stuff yesterday if you read my Blog post about that–it’s better if you’re wondering at least for the moment) and it’s been pretty manageable till NOW?!

NOW?!

I TRIED not to have any expectations about whether we would really take this trip but of course I have some. Of course I’m feeling like I should go into CRISIS MODE and think EVERYTHING’S OVER.

I should just crouch in a dark corner and not come out for goodness sakes. I mean, if the cough has started on Wednesday, how can I be better enough for Friday? I know how my cough is. And how can I get those “things” done I think I HAVE to get done in time for then?

WHY ME? WHY NOW? DANG IT!

So action time it is. No not running around like a wild mess (just…yet…anyway…). I got up, called my doctor and have made an appointment for 2:15pm. HOW COOL ARE THEY TO BE SO AVAILABLE? Oh and I get to see my favorite PA there too so another positive. I’m moving in the right direction. It is currently 12:45pm. I have to finish up writing this ASAP (and that’s true) so I can shower (always a big event for me with MS and lupus and now this dang sickness that’s coming on that has also turned into a fever–OK 99.1 but for me that’s a fever no matter what ANY doctor says) and drive over there and get to the solution ASAP. I have been told time and time again and even lectured by my doctors to not play with my cough. I have asthmatic tendencies that could EASILY turn into full on bronchitis or pneumonia especially with a messed up and compromised immune system so I CANNOT (emphasis on the NOT here) play with this. There is NO WAITING. If I feel a cough I do my best to get to the doctor ASAP.

And I have more of a MOTIVATION. Let’s kill this now. NOW.

DID I SAY NOW ENOUGH? You know, as if I have any control over a sick bug…..

Ha ha ha. Yeah right.

But I will do what I can to kill it.

Earlier this year I declared it was the year of OPERATION NURTURE NAHLEEN 2013!

Well…this is it.

OPERATION NURTURE NAHLEEN IS IN FULL EFFECT!

……….

P.S. I will do my best NOT to go past the NOW, not to go past TODAY and NOT to jump into the FUTURE which is only an illusion ANYWAY.

GOLLY I HOPE THIS HELPS AND WORKS.

I really really really really really (I can’t stress the reallys enough here) wanted to get away for a few days. THAT’S ALL. I haven’t gotten away in so long.

PLEASE.

I guess I’ll be flip flopping between Crisis and Operation Nurture all day. Suppose I’m human right.

Hmm. Interesting.

I’m a HUMAN…

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STUPID UNPREDICTABILITY!

Posted on March 5, 2013 by Nahleen

I CAN’T STRESS THIS ENOUGH! THE UNPREDICTABILITY OF MY IBS, LUPUS AND MS IS THE WORST THING EVER TO DEAL WITH WHEN IT COMES TO DEALING WITH CHRONIC DISEASES!

I know I was busy today. I know I was doing a lot of physical things. I know I can feel the weather coming (rain) on Friday. I know that I have IBS. I know that I have lupus. I know that I have MS. I know that I need to take care of myself. I know that the diseases are their own entities. I know they can act up whenever they want. I know I probably (notice my denial) pushed it today. I know that my diseases can flare up randomly.

I KNOW I KNOW I KNOW!!!!

BUT I DON’T KNOW…

!@#$%^&*(@ IT! (Insert swear word of choice here to express the feelings). No words can really fit for me to really express the frustration when it comes up.

There I was going along my merry way and then all the sudden my IBS just went BOOM in my digestive system and I started having stomach cramps OUT OF NOWHERE. WHAT THE?! I haven’t had stomach cramps in quite awhile thank you very much. I don’t want them right now. It’s actually been VERY NICE without them.

Sooooo, even though I’m almost done with stuff for today, I have to be done even sooner because MY BODY HAS DECIDED IT’S DONE.

…………………………..gggrrrr

So deep breaths I will take to calm down. Getting too worked up will set the stomach cramping on fire…

Time to rest and destress if possible…hopefully that helps.

It’s so UNPREDICTABLE it’s crazy. I haven’t been having a lot of stomach problems lately…I’ve been trying not to remark about it on purpose. But the IBS is still there. Yep. Hasn’t left. Go figure.

So now I do feel a bit better because I vented and wrote about it. Gotta calm down and destress and give in to my body. It wants love.

FINE! FINE! FINE! FINE! FINE!

Please let me eat tonight belly. Please…eating only toast is boring and doesn’t help fill me up…

PLEASE…

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My Relationship with the Sun

Posted on March 4, 2013 by Nahleen

Posted this on my Facebook Page Nahleen.com and thought it was perfect for a Blog post for today.  What came out wasn’t really intended which is why I think it’s worth the Blog post.  It hit a personal spot I didn’t know existed.  I love it when that happens!

 

SO HERE IT IS:

 

“Today is quote day I guess:, “Truly the light is sweet, and a pleasant thing it is for the eyes to behold the sun.”–Ecclesiastes—this feels really touches my heart because I absolutely love the light and really became friends with the sun especially when I was diagnosed with MS 10 years ago…we were best friends. Yet I always wondered why I felt weird in it and I couldn’t place it. I just thought it must be the MS…yet it was the sun that helped keep me sane. I truly believe that. The more I was outside, the more fresh air I got, the better I felt mentally. I wasn’t nearly as claustrophobic. But then I found out I had Lupus 2.5 years ago and EVERYTHING changed. I had to get out of the sun. I had to get away from it. Turns out it was really harming me too and that’s why I felt “weird”. I really grieved the LOSS of my contact with the sun especially that first year after my lupus diagnosis…it really did make me feel worse, especially because my body was so flared up and inflamed…now I wear sunscreen every day, hats as much as I can handle in the sun, sun protective clothing and it really helps…but it still bothers me. Turns out my relationship with the sun had to change and will probably never be the same again and that’s great for my physical health and a lot of my mental health because there is relief when my body is in darkness and I don’t have to mentally fight so hard to deal BUT IT IS SO HARD TO FULLY LET IT GO. So I take it one day at a time. And when I can get time with the sun I take it…even in small increments because I can’t cut it out totally…it is a part of who I am…guess it really teaches me how to deal with any relationship…”

Thank you all for being here.  You’re really helping me figure out who I am!

 

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DUDE!: 85 degrees in Los Angeles, CA on March 1st?!

Posted on March 1, 2013 by Nahleen

I mean I get it.  I live in a desert.  Los Angeles, CA is a desert.

BUT COME ON NOW!  85 DEGREES IN WEST LA on March 1st?!

GROSS!

I read today that today is the first day of Meteorological Spring.  Did LA skip any kind of spring and jump right to summer?!

Um, my multiple sclerosis and lupus are very mad at you weather.  They have been in a snit for the past few days anyway because it’s been in the 80s but today was just too much.  The sun has also been crazy intense and we aren’t even in the summer months yet.  Plus you jumped from 65 to 80 within a few hours and haven’t dropped below 80 during the day for a few days.

What happened to rainy season?  Are we not getting it this year?  That’s so uncool too.  We already basically live in a drought day in and day out.  We never really get the amount of rain we really ever need and I just heard that yesterday there was a brush fire in Riverside.  Now granted that’s pretty far away from where I live but it tells me we are in big ole trouble this year if this continues.

So this is the part where I start being really sappy nice to you weather because I mentally love you and am fascinated by your whole being.  Can you bring the temperature down about 15 degrees???  I think 70 is fabulous with a light breeze and some cool white puffy clouds in the sky.  Just lovely.  Some birds chirping would be nice too but I digress.

PLEASE PLEASE PLEASE don’t last 85 degrees.  I get enough of those days during the very long LA summer and have to deal.  But March 1st is really hard to deal with.  It puts a whole damper on me and my life.  The sun and heat fatigue start and well that’s just yucky…

OK?!  ARE WE COOL?  CAN WE COME TO A COMPROMISE?

I’ll even deal with 75 degrees.  That’s OK too.

Just some thoughts…you know.

I hope I wasn’t too rude earlier.  It just gets me upset when I’m too hot and too sunned and it takes NOTHING for me to go there and then I get cranky and I don’t like that.  An un-cranky Nahleen is better.

SOOOO YEAH.  I guess I’ve stated my case.

Hope you listened, understand and can help me out…

THANKS!

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CVS: Today’s Neighborhood Drug Store

Posted on February 28, 2013 by Nahleen

Ha! I don’t have regular TV anymore but when I did I used to be nauseated by how sweet and wonderful everyone was on those terrible commercials. Those Pharmacists reminded me of the Stepford Wives (is that even how you spell it?) with how sweet and sappy their smiles were to their supposed “Patients” or “customers” or whatever you want to call them.

Here’s the coolest part. I have lived next to my CVS Pharmacy for a very long time and have used that Pharmacy to get my medications the entire time. They have always been nice. However, about a year ago the entire staff was changed over. Not sure what happened. There was gossip amongst the people in line about what had happened. One day there was one group of people. The next day there was a WHOLE different group of people as if nothing had changed. There was no announcement and then that was it. It was this new group. So weird.

And I can remember being upset and thinking that EVERYTHING WAS OVER.

OVER.

There’s no way it could be any better. Trouble would ensue and I’d have to change Pharmacies. Life would be ruined.

RUINED.

And it turns out that this new group of people is FABULOUS and I might even have some friends there. They are faster, more efficient, are nice people and guess what? They don’t have to be nauseating Stepford Wives (why is that spelling bothering me?) or Cylons like in Battlestar Galactica with smiles painted on their faces. They can actually be good people AND…..

—PERHAPS EVEN FRIENDS. There are 2 gals I’ve become friendly with and I feel like we could even be friends. It felt lame at first to bring this up to one of the gals (I judge myself in a not nice way) but guess what? I had brought up hanging for coffee at some point with one of the Pharmacy Technicians a few months ago and I think I freaked her out a bit. It’s not every day someone is nice who comes to pick up medications and could ACTUALLY BE A FRIEND. I bet they spend most of their time dealing with upset and angry people (understandably, considering what I go through with Medical Insurance) and the last thing they expect is to really get to know people and hang out with them. I’m guessing she was also wondering just what I meant by “getting coffee” too…

And how cool is this? I bumped into the Pharmacy Technician I had talked to about going to coffee at some point (it’s in basically the same parking lot next door) and she and I chatted a bit today. You know, small talk stuff. Then she asked what I was doing and I said I was looking to cool off with something cold from Coffee Bean and she said she was on lunch and asked if she could come hang out with me. She also even offered to buy me coffee “so that way we can be real buddies” is what she said I believe. I politely declined and hope she knows she doesn’t have to buy my friendship. She was very sweet and that was a nice gesture.

We had a lovely chat for about a half hour while she was still on lunch. Actually I think she talked more than I did which I’m sure Corey and the rest of my peeps would be surprised to hear since once I get going I’m a real talker.

SO YEAH. That happened. It was a lovely break to my day and a great way to procrastinate and not do what I was supposed to do which was find paperwork for my new Appeals Attorney for my next Disability Appeal…but that’s a whole story for another day and I don’t want to ruin this post or my good feeling right now.

I hope you all get a chance to deal with nice people at Pharmacies too. It is my experience that they are hard to find (I mean I couldn’t deal with it all the time–BLECH!) but it looks like I’ve found me a Keeper..

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301 DAYS! That’s How Many Days…

Posted on February 22, 2013 by Nahleen

–I’ve walked in a row!

I can’t believe it! I have walked 301 days in a row. I am not kidding. I have been keeping track since I knew that I might be able to make it walking day by day.

I’m so excited! If/When I make it to a full year I will have to call/send a thank you not to my Physical Therapist who spurred me on last year in the first place. She told me just to walk. That walking was THE THING for me to do in my situation with MS and lupus. There was no question. I needed to walk. What did that entail? That entailed not judging myself by how far I’ve walked or how long. That I just needed to make it a point to walk. Seriously, she told me, I don’t care if it’s just a few minutes. If you don’t keep your legs moving you will be in trouble. Your MS and lupus will get the best of you and you may find one day that you can’t walk or that they are just too stiff and you may not have the motivation to do what you need to do–WALK– and to keep on keepin’ on.

So that’s what I’ve been doing. How do I do it? Well I walk near where my doctor appointments are. I walk in my apartment around and around if I have to. I have a walk dance I do that must look really cute. I walk around the block near my apartment. I walk at the mall I’ve gone to. I walk around the museum I have a membership to. I walk/march to a TV show I’m watching.

I WALK.

And my legs are so much better than they used to be. Sure there are days that my legs think I must absolutely be kidding them but they usually thank me in the end. In the beginning it was much harder because it felt like when I was walking that I might be causing some damage. That there must be days I shouldn’t be walking at all and I should rest them.

NOPE.

I am now more confident on my feet, I feel stronger, I have more endurance, I can walk longer distances and handle hills better, my mind and head get some de-stressing and meditation, I get to see outside and be with the world and the earth, I get to move my whole body, I can participate in more events, I can stand in line at supermarkets longer, I can handle my life better in GENERAL.

And that’s because I WALK.

And now I don’t know how not to walk during my day. I think I would be lost without walking. My body asks me for it and reminds me if I don’t do it.

SO I WALK AND I WILL CONTINUE WALKING NO MATTER WHAT AS LONG AS MY BODY ALLOWS ME.

So tonight as I think about what is frustrating me, I will turn my mind to the positive things going on in my life and one of the main parts of my life is that I WALK and I have WALKED 301 DAYS IN A ROW.

A TRUE MIRACLE and I am absolutely grateful to have met a woman, my previous Physical Therapist, who was able to get the message through to me in the right way.

JUST WALK. DON’T PUSH. JUST WALK. DON’T THINK TOO HARD. JUST WALK. DON’T JUDGE. JUST WALK.

Well, turns out she might just be onto something.

I think I’ll continue to do just that.

WALK!

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GO AWAY LUPUS AND MULTIPLE SCLEROSIS!

Posted on February 18, 2013 by Nahleen

DO YOU MIND BODY?!

I’M TRYING TO HAVE A LIFE HERE.

GO AWAY LUPUS, MULTIPLE SCLEROSIS, IBS, SINUS ISSUES, SENSITIVITIES TO EVERYTHING ELSE IN THE WORLD IT SEEMS LIKE! I’M DONE WITH YOU TODAY!

Of course, I’ve been done with you before you even started but I don’t want you here. Can’t you see I’m busy? Can you see I’m trying to expand my life? Can you see my mind’s busy? Yeah, I know that you get tired of my busy mind but I have given up and changed so many things in my life for you. MY MIND IS SOOOOO LESS BUSY THAN IT USED TO BE AND YOU KNOW IT BODY…

WHY DO I HAVE TO GIVE UP MORE TODAY?

ENOUGH!

Sure, I’m better than I was a year ago or perhaps even 6 months ago. Well that’s all good and I’d like to celebrate but not today.

I DON’T WANT TO CELEBRATE!

And if I did celebrate would that wear me out too? Would my butt still feel like it’s kicked? Would my hands still hurt while typing this? Would any activity take the wind out of me before I even really started it?

YES there is weird different weather happening. I HAVE NO CONTROL OVER THAT. It was 85 in LA for 2 days and then just warmer in general and now a big COLD storm is coming which I started feeling a week ago and my body is CONFUSED!

OK. WELL CONFUSION DOESN’T MEAN I HAVE TO STOP EVERYTHING!

LEAVE ME ALONE!

HOW DO I EXPAND MY LIFE WHEN YOU KEEP GETTING IN MY WAY?!

Sure I just had 2 doctor appointments last week and both doctors said they thought I was so much better.

BETTER….

BETTER….

CAN SOMEONE PLEASE TELL ME WHAT THAT MEANS EXACTLY?

BETTER….

Yet here I am with my butt feeling kicked again and feeling CRAPPY. What’s weird about today is that I’m having symptoms that I CANNOT DESCRIBE. I guess I just need to call them WEATHER SYMPTOMS…

AND THIS IS ME! I’M A WEATHER GEEK FOR GOODNESS SAKES! I LOVE THE WEATHER! I WANT TO BE FOCUSED ON THE EXCITEMENT OF THE IDEA OF “YAY!” WEATHER IS HAPPENING IN LA! HOW COOL IS THAT?!

Not.

Cool.

When.

I.

Have.

MS.

And.

Lupus.

………………………………

And yet somehow I just keep on going and am able to write this. I had to get it out. I’M SO FRUSTRATED! And the world keeps turning despite how I feel. And I look out the window and watch as people go along with their day…and they have NO IDEA what I’m going through and I have NO IDEA what’s happening in their lives.

AND LIFE GOES ON.

And yes I will be excited about the weather.

BUT.

The

MS

And

Lupus

Will Still Be Here With Me Through It All…

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I Survived the Hydrogen Breathing Test!

Posted on February 7, 2013 by Nahleen

Well.  That’s over.

I did it.  I’m still recovering and settling in but it was OK.

I did the test with one other gal who was pretty pleasant.  Another person was supposed to do it too but she showed up too late and they rescheduled her.  I don’t even think she was ten minutes late.  Phew.  Glad I got there early and stuff.

Anyway, first we had to drink this cup of water that had this weird sugary powdery not so yucky but not so good stuff in it.  Then we had to blow into this bag/balloon thingie and this tube and apparently it was measuring things and stuff from my breath.  CRAZY.  From what I read, it was measuring the amount of hydrogen I was producing just from my breath and that’s supposed to tell them if I have any small intestine bacterial overgrowth because I guess some of the bacteria can produce hydrogen.

WEIRD HUH?

Anyway, so I hadn’t eaten since 8:30pm the night before and was really dragging and doing things like almost punching Corey in the eye while saying goodbye to him this morning while he was still waking up in bed. Then I was draggy and words weren’t registering when I got there when others talked to me.  Then I was achy and creaky and all I wanted was water. I kept trying to reach for my invisible water bottle. So used to always having some water. And my body was so confused because it was out of routine and I hadn’t taken any meds yet and then it had to drink this weird stuff.

So then my belly reacted and everyone was like “UH OH” but I think it was just like–“What the heck is this crapola and where’s the real stuff”? because then it seemed to calm down.  Then every 20 minutes this nice lady would come in and have us breathe into the bag and tube and around and around we went. One time I lost track of my concentration and was worn out from doing this breathing stuff and first sucked in and then had no air left to go out but she said it was still readable so OK.

I tell ya though, drinking water and eating afterwards was GLORIOUS!  I’m so blessed to be able to drink and eat when I’m allowed to and have enough money to do so.  I know some people have to go days without drinking or eating and never know when they’ll be able to do so again so I was trying not to get too whiny about it, BUT IT WAS STILL HARD.  I’ll admit it.

MY BODY WAS OUT OF ROUTINE.

So I have been spending the rest of the day trying to get myself back.  I’m pretty wiped and yet I’m so glad that my body is strong enough to be able to handle such a strange experience to go through that is completely out of my comfort zone.  I know there is a reason I haven’t taken the test until now.  I would’ve been much more of a mess before if I had done it in the past.

Monday I see my doctor and hopefully I’ll find out the results.  FINALLY.  Been thinking about taking this dang test or something like it for years.  I didn’t know what I’d be in for but was told and cautioned by my Gastroenterologist at the time to be cautious and to wait if we were to do it at all because it may take a really big toll on my body.

Well it hasn’t been awful.  It’s just been uncomfortable and thankfully I didn’t have anything else planned that I HAD to do so I was able to REST MORE today and into the evening.

So that’s that.

Another test I can check off my list.  Oh the strange things I do to find out what’s going on in my body…

GOOD TIMES!

Categories: Appointments | Tags: , , | Leave a comment

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