Posts Tagged With: doctor

Diagnosis Part 4: “9 Times Out of 10”

In October of 2002 I’m guessing I was out of my mind.  I must’ve been.  What was I thinking?  I was working a full time job, I had just finished working as a Production Assistant on a “B” movie that I never heard about again, I was still working out and eating really healthy and then I decided that I needed to get a second job because I just wasn’t making enough money.  Hey, I was 25 and I was invincible right?

Wrong.

It was October in Los Angeles, CA so I’m guessing it was quite hot.  It usually is at that time of year.  I wouldn’t have known because I was too busy running around.  I worked full time at my day job in television which had its own stress.  I walked every day during lunch and worked out at least three times a week.  I ate well and I had lost almost 50 pounds.  My second job consisted of working in a linen store and running around lugging big bed spreads and other bed linens up tall ladders and dealing with customers.  Things were going well…I thought.  Yeah sure it was a bit hard on me but it would be on anybody.  I could do it.

Somewhere along the way as my feet continued to tingle on the bottom, I started feeling that dreaded tingling symptom travel up my left leg.  Then it traveled to my left arm.  Then my left hand.  I denied it.  I ignored it.  It couldn’t be happening.  An echo of a memory of my Primary Care Doctor’s voice rang in my head from months before, “Is the tingling going anywhere else up your leg or in your arm?” and I told him no and asked him why to which he replied, “Oh no reason.  It could just be more serious if it ever happens”…”ever happens”…”ever happens”.  Those two words rang in my head but I pushed them away.

Did you know it’s really hard to push that tingling symptom away when it doesn’t go away?  I waited two weeks until the tingling sensation then jumped from my left hand to my right hand and then I admitted it to me and somehow told Corey about it.  I wanted to be in denial.  I wanted to believe it wasn’t happening.  If I didn’t talk about it it would go away.

So somehow I got over myself and called my Rheumatologist to make an appointment.  I sat in that exam room and I told her about these new symptoms.  She looked at me long and hard and kept her facial expressions very still.  Then she said she wanted to order an MRI for me.  I freaked out.  An MRI?!  BUT it’s just tingling.  That’s all.  MRIs are to check for serious things.  I only had tingling.  That was all I had been told by how many doctors till then?  Somehow I got out the words and I asked her, “Why an MRI?” and she beat around the bush a bit and said, “Well your symptoms could be indicative of many things.  9 times out of 10 it’s not MS but it’s always good to check just in case.”  And she also made some comments about the lack of attention from my previous Neurologists and how she couldn’t believe I hadn’t had an MRI before then but that she’d get it taken care of.

MS????  What did it even stand for?  I didn’t know it stood for multiple sclerosis.  Why would I know that?  It’s not like we learn about all of the diseases out there during our normal lives.  What was that?  It sounded awfully serious.  All I could picture was those poor celebrities we had seen in the limelight who were in wheelchairs, if anything.  Then again, why would it be MS?  I hadn’t been diagnosed with anything else so there was no need to jump to any conclusions now.

So how did she calm me down?  Well she talked to me about her health problems and how she had just had to have an MRI herself and she told me the tricks of where to put my hands and how not to feel too claustrophobic and what to do when I was in the tube, etc.  She tried to show me how she could relate and some of what she said still sticks with me now when I have to have follow-up MRIs as part of my multiple sclerosis healthcare plan.

You know I somehow knew I had MS.  I don’t know how or why but something about it clicked for me.  I spent a lot of time contemplating it and talking about it with Corey while I waited for my HMO to go through the horrible rigamarole that was “necessary” to get me approved to have an MRI.  I had to wait at least a few weeks to be able to schedule my MRI let alone have one.

And you know all of this didn’t stop me from keeping up with my crazy full schedule.  To me I had no reason to slow down and stop.  Not yet anyway…

 

The next Blog will be about my 1st MRI experience.  It was a truly traumatizing and life changing experience for me that deserves it’s own Blog entry.

 

Thank you for reading my story.  It is so very hard to write but so necessary to express and share.

Categories: Diagnosis | Tags: , , , , , , , , , , , , , | 2 Comments

Moments of Peace Part 5

Hello!!!  Wow I am so thrilled it’s Friday.  I can’t wait for the weekend!  Welcome to all of my new followers!  I’m so excited you’ve joined me on my journey.  You are all awesome!

WHAT A WEEK IT’S BEEN:

Monday–Try to catch up with myself and with all the medical business that I didn’t get to take care of the week before (when I had 4 doctor appointments).  That included writing notes from my doctor appointments, updated my doctor list, updating my medication lists, etc.  It kinda felt neverending.

Tuesday–Had an appointment with my Primary Care Doctor.  He’s an interesting guy.  He kinda bugs me but he does try.  He was unhappy with the state of my blood pressure–I tend to go high–and tried to add another medication to help bring it down.

Wednesday–Had an appointment with me to take care of me.  It still feels like business in some ways when I do this and not exactly relaxing.  I try to schedule in more rest and do a special muscle soak bath.  Tried that new blood pressure medication.

Thursday–Woke up FEELING AWFUL and I was almost sure it was the new blood pressure medication.  Stopped taking it.  Spent the day recovering.  One little pill can feel so poisonous.

Friday–Hey that’s today.  STILL recovering from taking that awful pill on Wednesday.  My body continues to try to purge it out of its system.  Thankfully I am feeling better than yesterday.  Trying to be patient and gentle with myself.

Due to the roller coaster stress of the week I have definitely needed my Moments of Peace.  I can’t wait to share them with you:

05/04/12 My view from the sun deck as day turns to night.  The sky kept glowing.

05/04/12 My view from the sun deck as day turns to night.  Quite a big moon there and it is as if the moon is giving off wispy waves of clouds.

05/05/12 My view from Westside Pavilion in West LA as evening begins. We went to see Avengers that night and I had to get the picture from where I was. Loved Avengers by the way and highly recommend seeing it if you haven’t already. So much fun!  And…it was so nice to get out!

05/06/12 My view from the sun deck as day turns to night. Loving the moody sky.

05/07/12 My view from the sun deck as day turns to night. There is something about the sun peaking through the palm tree that I love love love!

05/07/12 My view from the sun deck as day turns to night. The sun is so powerful here.

05/08/12 My view on my walk in Pacific Palisades. I didn’t know at the time that the red/hot pink color would actually show up in the picture. Such a nice gift.

05/08/12 My view on my walk in Pacific Palisades. All I can say is WOW!

05/09/12 My view from the sun deck as day turns to night. The glowing sun.

05/09/12 My view from the sun deck as day turns to night. This time I was peaking around the corner at the sun.

05/10/12 My view from the sun deck as day turns to night. I love me some clouds.

05/10/12 My view from the sun deck as day turns to night. The sky often reflects what I’m feeling when I look at it. This was my worst feeling day this week. I think the picture speaks for itself.

And that was my week.  How was yours?  Have a shnazzy weekend!

 

Categories: Moments of Peace/Pictures | Tags: , , , , , , , , , , , , , , , , , , , | Leave a comment

Not a Happy Nahleen This Morning

I am so not a happy Nahleen this morning. I feel awful. I tried a new blood pressure medication yesterday–ONLY ONE PILL–I will NOT be taking that again.

I feel weak, depleted, achy, stiff, my body temperatures are going hot and cold, and I really feel like I’m getting the life sucked out of me. I’m trudging through muck and I feel like my hands are stuck to a stringy glue-like substance and I’m starting to lose touch with me.

I’m so frustrated and powerless. I had plans for a Physical Therapy appointment and I also had a commitment to fulfill for tonight. Both of these plans will now have to be cancelled for today…because of my body’s reaction to ONE PILL of a line of blood pressure medications that I previously struggled with six years ago. So I got to wake up off and on all night with my body feeling so “weird” and was given a chance to reminisce about those horrible days of trying crappy medications to take care of an issue that had nothing to do with my chronic illnesses. I think what was happening back then was that my multiple sclerosis and lupus (didn’t know I had lupus at the time) were feeling very overwhelmed by any new medication because I was taking a very strong injectable medication for my MS and they were especially unhappy with BP medications so my body went into purge mode. I remember all too well that I was starting to feel lifeless, like the medications were sucking the life out of me.

I have been currently taking a blood pressure medication that has actually worked out but my doctor insisted on raising the dosage by adding another medication and instantly my mind went into RED ALERT. I figured that I’d be okay this time because both my MS and lupus are being treated and I’m no longer on the injectable medication. WRONG. Turns out my body rejects diuretics altogether. No more. All done. I tried it for one day. My body hates it, doesn’t want it and it is all done.

I agree. I hate it, I don’t want it and I’m all done with it too. I will be calling my doctor today to let him know I’m not taking it. It has been a long time since I woke up feeling this physically crappy. Turns out I like my body much more without this new poison. Hey, at least it helps me have perspective that I don’t need to feel this crappy (and I haven’t FOR A LONG TIME NOW I GUESS) and that I want my previous body back–you know, the one from over 24 hours ago that hadn’t taken this stupid medication yet.

So today I will be resting, drinking lots of water, hoping my body can rebuild and repair itself and will do my best to have patience. It’s time to be gentle with me and to remember that I’m not the same person I was mentally or physically six years ago and I can get through this one thing at a time.

Categories: Uncategorized | Tags: , , , , , , , , | 2 Comments

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