Posts Tagged With: internet

Looking For People Who Have Both Multiple Sclerosis and Lupus

I’m on the Search.

I’m ready to have more people in my life again. For awhile, I had to really stay extra focused on a small group because it is actually tiring to deal with people, even though one of my biggest passions is connecting with others.

I’m looking to expand my community. My first mission is to find people to connect with on my Blog. I really get so much from all of you. My next mission is to find people who have chronic illness. It really helps to connect with people who are going through similar circumstances. I have had the privilege of connecting with people with chronic diseases already and it has helped immensely. I continue to look forward to finding people dealing with them. I’d also like to dig a little deeper and continue to connect with people who have either multiple sclerosis and lupus. Everyone I have connected with with those specific diseases has helped me in such powerful ways and I thank you all for that. This next part of my mission seems to be the most challenging.

**I’m looking for people who are experiencing both multiple sclerosis and lupus at the same time.**

I have a real need to connect and relate with people lately. I, myself, have been in support groups in the past and am currently a part of a spiritual support group that has had a profound effect on my overall wellbeing and I am forever grateful for that.

I used to be scared to find people who had similar issues because either I didn’t want to admit the truth to myself, I didn’t want to suddenly take on their unique issues, just wasn’t ready to express myself yet or felt like I couldn’t and that it all had to be kept a secret. I have learned over the years that it is a truly powerful experience to connect with others who have similarities with feelings and experiences.

I am really looking for that now. I have yet to find someone who has both MS and lupus and I know these people exist. I have read about them all over the internet, I have heard about them from my doctors but I want to talk to them directly. Oh and I left out one other part of my mission of human connection. I also want to connect with people who have more than one chronic illness. There seems to be a whole other section of issues and similarities with those who have multiple confusing diseases that they are trying to juggle at once.

So please, if you are someone who wants to connect, feel free to comment on my Blogs or email me from a link on my “About Me” Page. If you are someone who has any of these specific layers of human connection please feel free to do the same. I’d love to have a dialogue with you of some sort. And…if you are someone with both lupus and MS–someone like me–I highly look forward to connecting with you in some way. I think I have the case of needing to fill in the blanks and find more of an identity. One of my biggest confusions is deciphering between which symptom belongs to which disease such as fatigue, pain, stiffness, brain fog, etc. It drives me crazy!

That’s what’s been on my mind lately.

I hope this finds you all well and that we can connect soon.

That seems to be the theme. CONNECT CONNECT CONNECT.

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Dreaming of a Non-Boiling Fall Season…

It’s fr*&^%$#@! 95 degrees in West Los Angeles (over 100 degrees in the Valley) today (October 1st) and I find myself daydreaming about the Fall Season in New England where I spent my first 22 years…

Sure it’s actually quite typical for October to be really crazy hot in Southern California. Hence, the idea of fire season. This is usually the month when the fires can get really bad out here. The vegetation HAS HAD ENOUGH. And so have the people. It’s a wonder the people don’t melt and boil as well. The best part about the temperature is that the sun goes down earlier and it USUALLY (I feel like I’m jinxing us all in LA) cools off pretty well at night. USUALLY.

But the biggest tease these days is the Internet and the access to all these social sites where those in cooler climates are praising the Fall Season and how “lovely” it all is. I find myself drooling all over the wonderful pictures of the colorful foliage and wanting to jump in the pictures to get just a taste of it. I wish I had appreciated it more when I was there for 22 years. Funny how that works…

So while I sit here in my apartment with the AC at full blast so that my MS doesn’t go completely crazy on me (been feeling the heat quite a bit today even with the AC) and the blinds closed so I can live in a cool dark cave so that my lupus doesn’t go wacky on me (joints are hurting), I thought I’d come up with this list and fantasize away. We were back in New Hampshire/Massachusetts a year ago at this time and it was wonderful. I really thoroughly enjoyed myself and was feeling quite bouncy. I even found myself frolicking in the colorful forest. I was completely invigorated!

So here’s my Fall Daydream Drool List:
*colorful leaves
*dark red leaves
*lighter red leaves
*yellow leaves–almost golden
*orange leaves
*orangey/red leaves
*half-colored leaves still changing
*even the green leaves that have yet to change
*the breeze through the leaves
*watching the leaves fall from the trees
*the crisp cooler temperatures
*breathing in the fresh cool air
*wearing snuggly clothes
*cooler chilly temperatures but it’s not too cold and freezing
*hot cocoa
*hot coffee–pumpkin flavored coffee and other fall yummy flavors
*hot tea
*hot apple cider
*the steam rising from the hot cups of yumminess
*pumpkins of all shapes and sizes–not melting like they would out here on my balcony right now
*gourds of all shapes and sizes
*decorative corn
*special jams and jellies
*mums
*maple syrup
*maple candy
*maple donuts
*picking apples
*cider donuts
*pumpkin french toast
*pumpkin pancakes
*pumpkin baked yumminess
*cinnamon everything
*the way the sun light shines through the trees and the colorful fall foliage
*scenic drives to see the fall foliage
*lots of hills to drive through
*exploring the countryside looking at the fall foliage
*my eyes watering from looking at the deep vibrant colors
*country stores
*caramel apples
*caramel yumminess in general
*scarecrows
*Halloween decorations
*Halloween festivities
*FROLICKING through the fall foliage wherever I am
*sometimes even when it’s raining in the fall
*the bright clear days and the blue blue sky
*the sunsets–although we do get some pretty good fall sunsets here in LA too
*hayrides
*yummy fall smelling candles–yeah sure I can get them here but there’s something about burning them when it’s not HOT
*NOT having to turn the AC on
*sweaters
*scarves
*sitting and watching the leaves blow in the wind
*lakes surrounded by beautiful fall foliage
*a big field surrounded by beautiful fall foliage
*baking baking baking
*the festive feeling in the air
*the wood stove smell
*all of the wonderful FAIRS!
*eating too much yumminess at the Fairs
*bread bowl soups
*seeing my breath as I breathe outside
*the fall colors in general

And I could go on and on. I know I’m missing A LOT of stuff. Do you want to add anything? Please feel free to do so. I’d love to see what you have to share. And if you have any fall pictures you want to share, please please please post them here! I’d love to see them. I can’t get enough!

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