Monthly Archives: March 2013

CAMBRIA HERE WE COME!

YIPPEEEE!!!!

Heading to Cambria today at some point when we can pull ourselves together! We have reservations at a spa/hotel/resort in a room that has a king size bed, jacuzzi style tub with spa jets, a fireplace, a pillow top bed, a spa to get massages and facials, supposed live entertainment on Saturday nights, a luxury continental breakfast in the mornings, a walkway that connects to a boardwalk that leads through a State Park straight to the ocean and the list goes on and on! I can’t wait!

Yesterday was the kind of day that went really well in the beginning and it all flowed really well and then about halfway through after making a business call it sank and it sank fast. I don’t want to get into it but this trip has come at the PERFECT TIME!

Not only is Cleo Kitty doing quite well (and we have a lovely lady coming to watch and stay with her who has bonded with her in the past which I tell you is a VERY RARE THING if you’re not Corey or myself), I am feeling much much better from taking care of myself and going to the doctor and taking antibiotics that IMMEDIATELY kicked that infection’s buttinsky and from the storms happening last night that ACTUALLY INCLUDED ONE HUGE BRIGHT FLASH OF LIGHTNING AND THEN A HUGE CRAZY CRACK OF THUNDER RIGHT OVERHEAD (which is VERY RARE AND EXCITING IN LA) so that helped me get some physical relief, I’m actually feeling up to taking a road trip (WHOA! LOOK AT ME GO!–haven’t been able to plan a road trip or trust that I could do one longer than 2 hours and that was pushing it…for AGES it feels like), I’m going with Corey and I can’t remember the last time we got away just the 2 of us to a place that wasn’t connected to anyone we knew (don’t get me wrong I love my peeps but we need some REAL TIME AWAY), and well IT IS JUST TIME.

So off we go at some point today. Part of this whole trip is the road trip. We will get there when we get there. I used to love road trips with Corey. We have the best time if we just go with it. I keep thinking we should be hurrying up and leaving now but then that’s not either of our styles to be honest and that would kick my already emotionally fragile lupus and MS butt that has made my physicality a bit fragile too today. So when it’s meant to be that we go, we go.

To be honest, after that phone call yesterday regarding YET ANOTHER BIG LIFE DECISION (HAVEN’T I MADE ENOUGH OF THOSE LATELY!? A GAL NEEDS A BREAK HERE AND THERE!), if I wasn’t already getting away and planning on running away anyway to try to relax and clear my head, I would’ve run away anyway. I have mentally had ENOUGH!

So enough of this writing chatter. Gotta get back to my self care so we can get the heck outta here.

THE ONLY DOWNSIDE?

… (sad face here) Leaving Cleo Kitty. I haven’t left her since the whole “cancer” episode (I say that because she is so resilient and awesome that she doesn’t seem to have cancer (really long story–but she does have some other serious health problems and sensitivities. Never did get a definitive diagnosis because she’s a kitty and didn’t need to be more traumatized than she already was for goodness sakes) and that was in December 2011. We are quite attached to each other and have been each other’s caretakers since then. So as much as I know it is for the best, it will still be hard. But we will be back Sunday night. And I have to remember that the fact that we can even leave her at this point is amazing. In November we had planned a similar trip to celebrate 15 years together and 6 years of marriage and had to cancel it because her health was so questionable and we couldn’t leave her. Now I look at her and it’s hard to believe that happened. She’s so in the mood to keep living and we finally got to the bottom of her health stuff too so that’s good.

Anyway, I keep babble-writing. Off I go!

Write soon!

Oh and to my new followers HI! Yay! Thanks for joining me on my crazy path. To my commenters–yay thank you for commenting! I plan on responding next week.

Have a great weekend y’all! I know I am not the only one going through this thing we call life and holy moly it can be hard and intense…

Love to all!

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THE COUGH DECIDES TO START NOW?!?!

I’M COUGHING TODAY?! TODAY?!

I’ve been waiting for and fighting off something like a sick bug that I could feel trying to start for what seems like 2 months and it has worked. I have held it off. AND TODAY IT WANTS TO START GETTING BAD?

UM HELLO! COREY AND I ARE TRYING TO GET AWAY THIS WEEKEND TOGETHER TO GO TO CAMBRIA!

We’re overdue for it. This is supposed to be to celebrate 15 years together (actual Anniversary was in November) and 6 years married (in November too). We weren’t able to go because our poor Cleo Kitty was sick and I don’t blame her for that.

And all has been going pretty well with my health (I mean ups and downs and IBS stuff yesterday if you read my Blog post about that–it’s better if you’re wondering at least for the moment) and it’s been pretty manageable till NOW?!

NOW?!

I TRIED not to have any expectations about whether we would really take this trip but of course I have some. Of course I’m feeling like I should go into CRISIS MODE and think EVERYTHING’S OVER.

I should just crouch in a dark corner and not come out for goodness sakes. I mean, if the cough has started on Wednesday, how can I be better enough for Friday? I know how my cough is. And how can I get those “things” done I think I HAVE to get done in time for then?

WHY ME? WHY NOW? DANG IT!

So action time it is. No not running around like a wild mess (just…yet…anyway…). I got up, called my doctor and have made an appointment for 2:15pm. HOW COOL ARE THEY TO BE SO AVAILABLE? Oh and I get to see my favorite PA there too so another positive. I’m moving in the right direction. It is currently 12:45pm. I have to finish up writing this ASAP (and that’s true) so I can shower (always a big event for me with MS and lupus and now this dang sickness that’s coming on that has also turned into a fever–OK 99.1 but for me that’s a fever no matter what ANY doctor says) and drive over there and get to the solution ASAP. I have been told time and time again and even lectured by my doctors to not play with my cough. I have asthmatic tendencies that could EASILY turn into full on bronchitis or pneumonia especially with a messed up and compromised immune system so I CANNOT (emphasis on the NOT here) play with this. There is NO WAITING. If I feel a cough I do my best to get to the doctor ASAP.

And I have more of a MOTIVATION. Let’s kill this now. NOW.

DID I SAY NOW ENOUGH? You know, as if I have any control over a sick bug…..

Ha ha ha. Yeah right.

But I will do what I can to kill it.

Earlier this year I declared it was the year of OPERATION NURTURE NAHLEEN 2013!

Well…this is it.

OPERATION NURTURE NAHLEEN IS IN FULL EFFECT!

……….

P.S. I will do my best NOT to go past the NOW, not to go past TODAY and NOT to jump into the FUTURE which is only an illusion ANYWAY.

GOLLY I HOPE THIS HELPS AND WORKS.

I really really really really really (I can’t stress the reallys enough here) wanted to get away for a few days. THAT’S ALL. I haven’t gotten away in so long.

PLEASE.

I guess I’ll be flip flopping between Crisis and Operation Nurture all day. Suppose I’m human right.

Hmm. Interesting.

I’m a HUMAN…

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STUPID UNPREDICTABILITY!

I CAN’T STRESS THIS ENOUGH! THE UNPREDICTABILITY OF MY IBS, LUPUS AND MS IS THE WORST THING EVER TO DEAL WITH WHEN IT COMES TO DEALING WITH CHRONIC DISEASES!

I know I was busy today. I know I was doing a lot of physical things. I know I can feel the weather coming (rain) on Friday. I know that I have IBS. I know that I have lupus. I know that I have MS. I know that I need to take care of myself. I know that the diseases are their own entities. I know they can act up whenever they want. I know I probably (notice my denial) pushed it today. I know that my diseases can flare up randomly.

I KNOW I KNOW I KNOW!!!!

BUT I DON’T KNOW…

!@#$%^&*(@ IT! (Insert swear word of choice here to express the feelings). No words can really fit for me to really express the frustration when it comes up.

There I was going along my merry way and then all the sudden my IBS just went BOOM in my digestive system and I started having stomach cramps OUT OF NOWHERE. WHAT THE?! I haven’t had stomach cramps in quite awhile thank you very much. I don’t want them right now. It’s actually been VERY NICE without them.

Sooooo, even though I’m almost done with stuff for today, I have to be done even sooner because MY BODY HAS DECIDED IT’S DONE.

…………………………..gggrrrr

So deep breaths I will take to calm down. Getting too worked up will set the stomach cramping on fire…

Time to rest and destress if possible…hopefully that helps.

It’s so UNPREDICTABLE it’s crazy. I haven’t been having a lot of stomach problems lately…I’ve been trying not to remark about it on purpose. But the IBS is still there. Yep. Hasn’t left. Go figure.

So now I do feel a bit better because I vented and wrote about it. Gotta calm down and destress and give in to my body. It wants love.

FINE! FINE! FINE! FINE! FINE!

Please let me eat tonight belly. Please…eating only toast is boring and doesn’t help fill me up…

PLEASE…

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My Relationship with the Sun

Posted this on my Facebook Page Nahleen.com and thought it was perfect for a Blog post for today.  What came out wasn’t really intended which is why I think it’s worth the Blog post.  It hit a personal spot I didn’t know existed.  I love it when that happens!

 

SO HERE IT IS:

 

“Today is quote day I guess:, “Truly the light is sweet, and a pleasant thing it is for the eyes to behold the sun.”–Ecclesiastes—this feels really touches my heart because I absolutely love the light and really became friends with the sun especially when I was diagnosed with MS 10 years ago…we were best friends. Yet I always wondered why I felt weird in it and I couldn’t place it. I just thought it must be the MS…yet it was the sun that helped keep me sane. I truly believe that. The more I was outside, the more fresh air I got, the better I felt mentally. I wasn’t nearly as claustrophobic. But then I found out I had Lupus 2.5 years ago and EVERYTHING changed. I had to get out of the sun. I had to get away from it. Turns out it was really harming me too and that’s why I felt “weird”. I really grieved the LOSS of my contact with the sun especially that first year after my lupus diagnosis…it really did make me feel worse, especially because my body was so flared up and inflamed…now I wear sunscreen every day, hats as much as I can handle in the sun, sun protective clothing and it really helps…but it still bothers me. Turns out my relationship with the sun had to change and will probably never be the same again and that’s great for my physical health and a lot of my mental health because there is relief when my body is in darkness and I don’t have to mentally fight so hard to deal BUT IT IS SO HARD TO FULLY LET IT GO. So I take it one day at a time. And when I can get time with the sun I take it…even in small increments because I can’t cut it out totally…it is a part of who I am…guess it really teaches me how to deal with any relationship…”

Thank you all for being here.  You’re really helping me figure out who I am!

 

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DUDE!: 85 degrees in Los Angeles, CA on March 1st?!

I mean I get it.  I live in a desert.  Los Angeles, CA is a desert.

BUT COME ON NOW!  85 DEGREES IN WEST LA on March 1st?!

GROSS!

I read today that today is the first day of Meteorological Spring.  Did LA skip any kind of spring and jump right to summer?!

Um, my multiple sclerosis and lupus are very mad at you weather.  They have been in a snit for the past few days anyway because it’s been in the 80s but today was just too much.  The sun has also been crazy intense and we aren’t even in the summer months yet.  Plus you jumped from 65 to 80 within a few hours and haven’t dropped below 80 during the day for a few days.

What happened to rainy season?  Are we not getting it this year?  That’s so uncool too.  We already basically live in a drought day in and day out.  We never really get the amount of rain we really ever need and I just heard that yesterday there was a brush fire in Riverside.  Now granted that’s pretty far away from where I live but it tells me we are in big ole trouble this year if this continues.

So this is the part where I start being really sappy nice to you weather because I mentally love you and am fascinated by your whole being.  Can you bring the temperature down about 15 degrees???  I think 70 is fabulous with a light breeze and some cool white puffy clouds in the sky.  Just lovely.  Some birds chirping would be nice too but I digress.

PLEASE PLEASE PLEASE don’t last 85 degrees.  I get enough of those days during the very long LA summer and have to deal.  But March 1st is really hard to deal with.  It puts a whole damper on me and my life.  The sun and heat fatigue start and well that’s just yucky…

OK?!  ARE WE COOL?  CAN WE COME TO A COMPROMISE?

I’ll even deal with 75 degrees.  That’s OK too.

Just some thoughts…you know.

I hope I wasn’t too rude earlier.  It just gets me upset when I’m too hot and too sunned and it takes NOTHING for me to go there and then I get cranky and I don’t like that.  An un-cranky Nahleen is better.

SOOOO YEAH.  I guess I’ve stated my case.

Hope you listened, understand and can help me out…

THANKS!

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