Posts Tagged With: Facebook

My Relationship with the Sun

Posted this on my Facebook Page Nahleen.com and thought it was perfect for a Blog post for today.  What came out wasn’t really intended which is why I think it’s worth the Blog post.  It hit a personal spot I didn’t know existed.  I love it when that happens!

 

SO HERE IT IS:

 

“Today is quote day I guess:, “Truly the light is sweet, and a pleasant thing it is for the eyes to behold the sun.”–Ecclesiastes—this feels really touches my heart because I absolutely love the light and really became friends with the sun especially when I was diagnosed with MS 10 years ago…we were best friends. Yet I always wondered why I felt weird in it and I couldn’t place it. I just thought it must be the MS…yet it was the sun that helped keep me sane. I truly believe that. The more I was outside, the more fresh air I got, the better I felt mentally. I wasn’t nearly as claustrophobic. But then I found out I had Lupus 2.5 years ago and EVERYTHING changed. I had to get out of the sun. I had to get away from it. Turns out it was really harming me too and that’s why I felt “weird”. I really grieved the LOSS of my contact with the sun especially that first year after my lupus diagnosis…it really did make me feel worse, especially because my body was so flared up and inflamed…now I wear sunscreen every day, hats as much as I can handle in the sun, sun protective clothing and it really helps…but it still bothers me. Turns out my relationship with the sun had to change and will probably never be the same again and that’s great for my physical health and a lot of my mental health because there is relief when my body is in darkness and I don’t have to mentally fight so hard to deal BUT IT IS SO HARD TO FULLY LET IT GO. So I take it one day at a time. And when I can get time with the sun I take it…even in small increments because I can’t cut it out totally…it is a part of who I am…guess it really teaches me how to deal with any relationship…”

Thank you all for being here.  You’re really helping me figure out who I am!

 

Categories: Uncategorized | Tags: , , , , , , | 4 Comments

Nahleen.com Is Expanding!

Yay!  I not only have a Facebook Profile now but I also have a Facebook Page with the same name, “Nahleen.com”!  I have now made my whole Profile public so feel free to join in the fun!  I have really enjoyed sharing all kinds of beautiful photos, other pages, inspirational quotes, silliness and anything else I can find on my own Personal Page.  I was sharing what I found personally helpful.  What has happened is that I have found out from all kinds of people how much they really like what I share compared to what else they can tell I look at.  That what I post really helps them.

I just knew it was time!  So here I go!  You can find me at: http://www.facebook.com/nahleen (Personal)–feel free to friend me and tell me and please introduce yourself (if you’re not already a Facebook Friend)–and at http://www.facebook.com/nahleencom (the actual Page connected to this Blog).

I’m very excited!  Please join me!  I look forward to connecting with you!

Categories: Uncategorized | Tags: , , , | Leave a comment

125 BLOG POSTS!

Oh my goodness! I have hit the 125 Blog post mark!!!!!!

So cool. I couldn’t have done it without you so thank you!

It’s been a roller coaster week and I’m currently in a symptom flare (MS and lupus are FUN–NOT!) so I will try to stay positive (which I’m hoping will help me). I wanted to take a moment and thank you all for being here with me on this writing journey. I have always felt like a writer ever since I was very young and I have really struggled with it. In 5th grade I wrote a children’s holiday story and my teacher liked it so much that she tried to work with me to expand on it a bit and add a few more details (you know, to improve it) so that she’d feel comfortable trying to get it published in a children’s magazine (or something of the sort–what I heard was published) but I think I took her criticism so personally that I blocked her and it off and refused to change the story AT ALL because I liked it the way it was. And soooo, the story was not published. That blocked me and disappointed me for a few years. I still have the story and am hoping to feel willing to expand on it now after all these years.

Then I started writing more in middle school and either I didn’t want anyone to read it and kept it to myself or what I wrote was crazy serious deep (hello puberty) and my teachers asked for lighter stories. And then as a junior in high school I seemed to really blossom as a writer and all of my teachers highly encouraged me and told me they really thought I’d get somewhere with it and to keep expanding on it. Well, I expanded on it and that all really went well.

AND THEN in college I took one writing class and the professor was “not impressed” with my writing and told me I wrote too much and wanted me to get to the point. So here I was completely confused because one school of thought told me to expand and the other wanted me to cut it down. At that point I shut down writing. I may not have had I not been going into the high maintenance field television production that took up most of my time and focus. Production also helped me learn how to express myself in a very different creative way. I had to show you, not write it for you to experience. So, I veered off the writing path and took quite a journey into production.

Yet, there was always this deep soulful need to write. It was in me. It had to come out. But then I thought I had to be perfect. FEAR started to run me and it just never really worked. When I was first diagnosed with multiple sclerosis almost 10 years ago, I had people from different parts of my life who had nothing to do with each other telling me to write my story because of how I express myself. They told me I had a story to tell. They told me that I could really help others and probably myself. That it’s important to let others know what really happens with chronic illness.

And I tried, I really did. I tried too hard. I started up this Blog in 2009 and I think I wrote only 3 posts. Actually, I think I still have them posted if you want to check them out. Reading them now I know I still wasn’t ready. The real me wasn’t really coming out. I felt raw and vulnerable.

Meanwhile, people still said that I needed to tell my story. That I could really help. And that writer in me wrestled with my ego until it finally BURST OUT in March of this year. It has been over 6 months and I have no plans to stop. I had no idea where this journey would take me. I still have so much more to write.

Thank you to those of you who have commented on my posts, encouraged me, read the serious ones, read the long ones, read the silly ones, put up with the ’80s and partied with me, have gone on my doctor appointments with me, have shared my Moments of Peace with me, have felt MS and lupus with me, have read my complaints, have read my hope, and who are teaching me about me. You all play a part in who I am and for that I am truly grateful.

Please feel free to comment any time about any post (I would love to hear from you), to Follow my Blog, to share my Blog with others, to email me in private (you can find a link to my email on the “About Me” page), to friend me on Facebook (Nahleen Blake), to follow me on Twitter (nahleenblake), and connect in general. Oh and by the way, I’m thinking of starting up my own Facebook page where I’m hoping to share my favorite quotes, pictures, silliness, fun, stuff about me, stuff about you if you want, music, anecdotes of life, Blog posts, etc. Keep an eye out for that update soon. More to come!

And thank you all for being you. You help me to be me. And that soul writer in me is FINALLY starting to feel satisfied. I look forward to more of this journey. It has been truly amazing!

Categories: Uncategorized | Tags: , , , , , , , , , , , , , , , | Leave a comment

A BIG OLE THANK YOU!!!

Thank You! Yes You!

You are reading this right now and I thank you. I wanted to send a little note along to you all and share my gratitude and appreciation for your support, encouragement, conversation, and anything else connected to a Blog that I know I’m missing.

(My head is not thinking straight. This heat is kicking my butt today. Mega slow motion…UGH.)

For years I was unsure anyone REALLY wanted to know my story. I mean, why me? There were lots of people who tried to tell me I had a story to tell and that people might want to read it. My thinking is that we all have a story to tell and I had this odd idea that since we all had a story to tell that mine wouldn’t be good enough or that you wouldn’t care. But you do care.

It finally clicked at the beginning of this year that it shouldn’t be about whether you all want to read or know my story but whether I want to share it. Then it became a NEED to share it because I was going to burst! I needed to get it out. There has been so much inside me for years…so much I needed to express. I used to write a lot when I was younger and I loved it. Then I lost site of it as I explored other creative paths (and because one college professor didn’t like my writing so woe is me I can’t write ANYMORE–dramatic I know) and built a wall to block my writing as high and tall as I could muster. I wanted to write about my diagnosis story with multiple sclerosis 10 years ago when I was first going through the traumatizing hell of trying to figure out what was wrong with me but I wasn’t ready. And yes, I think it took me nearly 10 years to take down that wall piece by piece.

And so March of this year was the time to TRY. Apparently I was READY. I couldn’t stop once I started. It was all starting to burst out the flood gates because now there was some freedom. It’s hard to get the crap out. It’s hard to be vulnerable and to tell the truth–to be personal and yet I’m learning it’s so important to get it out.

AND you have all been there with me. You responded to my Blog posts about MS, lupus, doctors, appointments, concerts, health, heat, people, ’80s, my moments of peace and the topics really are endless. You liked my posts on Facebook. Yes I’m on Facebook (I mean, who isn’t right?) as “Nahleen Blake”. My page is private so please send me a friend request and feel free to let me know who you are and how you found me. I love to converse on there with all kinds of people. It’s been great to catch up with old class mates from way back to new people and to hear your feedback about what I post and the messages/photos I post. I’m also on Twitter as “nahleenblake”. Feel free to follow me if you like. I would love it too if you responded to my Blogs and we opened up conversation. One of my favorite things is to connect with people. Please talk to me. I’ll be honest. It’s kinda weird putting myself out there to what feels like the “WHOLE WORLD”. You can also send me an email and there’s a link to my email on my “About” page.

THANK YOU. (And Corey–thank you with all my heart. You are my biggest support of all. You have coached me and loved me the whole way through. That means so much to me.)

You are ALL helping me to BE ME.

That matters most.

P.S. Anyone know of a human-sized refrigerator I can go in now to cool off so my MS doesn’t act up anymore in this heat????

Categories: Uncategorized | Tags: , , , | Leave a comment

Blog at WordPress.com. Theme: Adventure Journal by Contexture International.

Follow

Get every new post delivered to your Inbox.

Join 375 other followers

%d bloggers like this: